Wednesday, July 18, 2012

Panty of the day (and impulse control joke)

I am resting from a medical procedure today. I am and will be posting three times a week now, having a regular schedule of sorts. My panties today are for Pride, or Disability Pride, or getting my Freak and Geek on.

In Seattle
GeekGirl Con on Aug 11 & 12th has not only Burlesque but Nerd Burlesque including a show themed around Josh Whedon. The Saturday panels include two on disabilities: one on disability in comics and the other on why with those with disabilities 1 in 10 (or 1 in 7) is there no representation in SyFy, TV, graphic novels, etc? Linda said it looks good but we have no funds to go, or more specifically to stay in a hotel with controlled air con (seattle hotels are expensive!). But if you are in the area, it looks great.

I am winning against my disease. I realized that I should be celebrating, and find a GP that wants help that continue. I wheeled to the library on Monday, and found out from the security guard, who is from Fiji, that the Judo is now in an accessible location. And Judo has a wheelchair classification. As my boxing coach hasn’t returned, maybe I should take up the art of Judo.

On the way back from the library, I was wheeling up the third block going uphill. My style is ‘push, push, push’ then get to the corner and ‘gasp gasp gasp’. I also encourage/insult myself, ‘Come on, you call that pushing, more,’ Then I growl. This helps deal with the strain and clears the pavement as pedestrians almost run to cross the street. I passed a couple, man with his wife who had advanced MS and we both reached the top of the hill at the same time. “No lack of UP in this city.” I said.

“You can say that again.” He replied. But I didn’t (see, my impulse control joke of the day).

11 comments:

Matthew Smith said...

Great that you've turned a corner. Your post is much more fluent and coherent than many of your recent ones. What's happened all of a sudden? Is it time to change the "end-stage terminal" bit in your sidebar?

I know someone with EDS who recently got her proper diagnosis and has started to change her lifestyle (trying to be more active, rather than less as dictated by her previous diagnosis) and has really seen benefits. (Not intended as advice, just a happy observation of a trend.)

Anonymous said...

I am glad you are feeling better. You have been so very weak and it is nice to know you have had the strength to get out to the library. Hooray for being NDY! I think you would excel at judo. I do worry that when you are feeling better you over do so please listen to your body and try not to do that.

Cheryl

Elizabeth McClung said...

Matthew: No, still terminal, still have four or five incidents a day which would send most people to the ER and a couple a week that would send me to the ER if there was hope in a hospital functioning in the 21st instead of the 20th century. Just a realization that simply because your tests show that you are anemic, can't produce red blood cells, have internal bleeding, have continious congestive heart failure, have failure of a majority of the 100+ lymph nodes, failure of the lungs, failure of the diaphram, failure of the kidneys, failure of the central nervous system, destruction of the spinal cord, progressive destruction of all nerves, pain from the nerves which do work, frontal lobe damage, teporal lobe damage, occular damage, daily TIA's and other ruptures doesn't mean I'm not still alive. And if that means I can focus enough on some days or some hours to do things or interact in some way, then that is a good thing. Like the woman who died in Vancouver from stage four cancer recently, she was blogging about doing Yoga 8 days before - didn't stop the terminal, but she also did yoga.

Elizabeth McClung said...

Cheryl: I would listen to my body if it ever said anything BEFORE it decided I overdo things. But you know how it all seems to be going well, I am wheeling round the markets then...oh, I fall over, I have a seizure, I go into shock, I stop breathing, etc. But with the evenings cooler, I can wheel over the hill and then recover in sleep - I have, with Linda's help, gotten a sort of rhythm back, which I have lacked for many months.

Elizabeth McClung said...

Plus, the load shared by two means that the level of function increases for one.

Devi said...

Those are awesome panties.

Also glad you had the energy to get to the library.

Baba Yaga said...

Rhythm does help: I hope you continue to feel better. About time, of course!

*NOt* sure, though, about insulting yourself as a method of motivation - haven't you experienced enough abuse?

Elizabeth McClung said...

Devi: yes, I make sure to wear panties to shock and/or offend hospital staff - haha.

Baba Yaga: It is the problem of a self driven perfectionist type A personality - other people insulting me may hurt me but won't change what I do, but telling myself I am giving my all, what greater sin than that?

JaneB said...

Good to hear things are getting a little bit more structured - I hope you have a bra to match (or perhaps in rainbow dots?) for the further embarrassment of ER staff...

Neil said...

Oh, it's so good to know that Victoria's hospitals have made it to the 20th century. I got sent to a specialist once who I'm sure was still pining for life in the 1500s. I didn't take his advice for surgery, his diagnosis was wrong, and he gave me a 9-day-long migraine with his examination. The exam included a nasal spray that I may have been allergic to - it was cocaine-based, and I'm not repeating the experiment.

Good to hear that you're up and around, dear. As for blogging before death, there could be a deth lurking around the next intersection for any of us. Keep blogging, and keep *living!* At least until the next step in your adventures...

The explanation for insulting yoursef into better performance sounds like you're being codependent for yourself. :)

Hmmmm, is that possible?

And those panties are NOT going to shock anyone; especially in an emergency room. They look rather cute.

Love and zen hugs,
Neil

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