Wednesday, November 16, 2011

Missed this and that

Missed an appointment today because of some food poisoning issue, and having no clothes ready, and just not enough time to arrive on time. And I went and slept, and slept for the hours I needed, which I had been shaving.

I need 8 hours of sleep, six awake, two to three down, then six awake. BM’s can take 15 minutes or 3 hours. I have been trying for 2-3 weeks to make that stable, with all the tools doctors can give. But not yet. I have been trying to make the day schedule work….but not yet. That the day schedule, which sometimes happens, but then the week and month schedule screw it up too – it is like flying a helicopter.

Every week, every month there are appointments and things to be done to increase survival. I also need to shower, change clothes, and do the mundane tasks which only need planning if living sucks, like ‘taking a drink of water’ – not usually something that takes a couple minutes, or ‘looking at your watch’ – but it does take minutes now, and focus, and concentration. I need to exercise, I need to shower. I still don’t have consistent workers until Wednesday, and in the last three weeks, cancellations from Friday to Monday. Tuesday we don’t have workers. That gives me 2 hours on Wednesday, 2 hours on Thursday and alternating Thursday nights (except this month) when I will get meals, might get exercise, a shower/bath, and clothes.

It is a funny old life.

I really needed that appointment today. But what could go wrong did. The worker today didn’t follow instructions and actually put away the things I needed for getting ready to go. I can’t try again tomorrow, because there is no space or time tomorrow, but I can try again later, maybe, in a month or two.

5 comments:

SharonMV said...

Dear Beth,

I'm sorry your missed your appointment. It takes you a lot of work and preparation to get ready. I miss appointments when I'm too sick to go, then they can all get backed up. I'm perturbed when I miss one that I need and more perturbed when I have to go see one of my regular specialists (eg: rheumatologist),who does nothing for me.
I haven't written much here lately due to several bouts of illness. Just wanted to let you know that I'm still here, still reading, still love you.

Sharon

wendryn said...

I'm sorry you missed the appointment, especially after trying to get there. I am glad you got some sleep, though. I hope the workers start doing a better job - sounds like it continues to be a fight.

*hugs*

Linda McClung said...

I think your body really needed that sleep yesterday. I am glad you were able to catch up. Bummer about missing the appointment.

I've asked for new Monday/Tuesday lunchtime workers so fingers crossed.

Neil said...

Missing appointments isn't great, but if the sleep is more useful than the appointment, then so be it.

I hope you can sleep tonight without pain, and be alert and painfree in the morning.

Love and zen hugs,
Neil

Neil said...

Whoa, stop; un momento, por favor. Food poisoning? You managed to slip that little tidbit in and call it no more important than having no clothes? Well, yes, no clothes in fall/winter is generally not good, and Western society does frown upon public nudity.. But food poisoning!?!

Food poisoning isn't good, especially when you have to work so hard to get nutrition INTO you. Having it return (in either direction) is really no fair. I hope it was just a minor bout, and you're okay now - for a given definition of "okay."

Mind you, it could speed up the bowel movements; just not in a good way, I guess.

Atheist prayers for a good night are on their way.

Love and zen hugs,
Neil