Sunday, July 24, 2011

Beth FUBAR

Cheryl here posting for Beth...

Beth is progressively FUBAR. She has tried to get to the computer for three days without success. If you have an encouraging/final comment, message, email. letter, package, now would be a very good time to act. As, IF, Beth manages to stabilize how much function she will regain is unknown. The wish list has medical need items such as florastor or insulated drink containers or gift certificates so supplies can be ordered. Linda will review comments on Tuesday when she returns.

31 comments:

annette2 said...

Hi Beth

I have been reading your blog for so long and really admire your amazing capacity to reach out and connect with people in so many ways and on so many levels. The postcards you send are the nicest ones that I have ever received and I saved them all.
You sent me the coolest notepad - I passed it on to a very cool person I work with who was feeling down and I got to bask in your reflected coolness.
If it weren't for you I would know nothing about animeand would never have heard that song - Motiva, which is on my playlist of favourite songs.

I hope that you get through your latest setbacks. You are a formidable woman

Annette

Anonymous said...

Your eloquent and evocative writings throughout your journey have been so moving. You have made a real and lasting difference to your chosen family and to many, many readers. Sending you strength and peace during this time.

wendryn said...

I'm so sorry to hear it's going so badly.

Postcards are coming. Emails, as usual. Fun money, too. Not sure how much those things mean, but we are thinking about you all.

*HUGS*

Raccoon said...

Uhm... I guess I'm not calling tonight to see how things are going.

Beth, I'm still here. I'm still thinking about you.

I don't know how much effort you been putting forth -- no one can -- but I've seen some of it. And if anyone could use a little time off, it's you.

Michael

IWASNTBLOGGEDYESTERDAY said...

I am so sad to read this.My thoughts and prayers are with Beth and all of you with her surrounding her with Love. My hope is that her pain has lessened.

Anna said...

Haven't been reading ut blogging for a gett Long time. Sorry to see this post. Hang in there. Hope you feel better. Hugs to you all.

Kita said...

ty Cheryl for the update on Beth. I hope to God that this is not *it* yet I know deep down that this time must come eventually. I love her to pieces (even though I dont comment as much these days - my own personal hell demands far too much of me) but please, just let her know that I am thinking about her and praying for her. <3

Baba Yaga said...

Thank you, Cheryl. We all knew it was coming, but damn.

Wishing you all three comfort, good pain relief for Beth... and the ability to rest, to let duty to be done for now, or just be done.

Selene said...

holding you both in my thoughts, and hoping for a positive update soon xo

SharonMV said...

Dear Beth,
I love you my dearest friend. I am here.

Sharon

Dear Linda,
I wish I could do more to help, that I could give more that words as support. Words and the truth behind them are very important to Beth. I could not have a better friend than Beth. I thank you for being her love & her support. I sent an e-mail, I hope you can read it to Beth.

Sharon

Noisyworld said...

I am so sorry to hear this, thinking of you all :)

Ellie said...

Elizabeth, your tireless belief in and work for justice and tenacity in the face of adversity touched me so much. If I ever better the world through my own actions, it will be because your stories gave me the courage to do so.

I am thinking of you and Linda and wishing you the least possible pain and the best possible experiences from day to day.

Ness said...

I just got home today. Tell Beth we love her. I sent her an email before I red thsi too if you want to read it to her.

Kate J said...

Dearest Beth, you've clawed your way back so many times, and I do so hope you can do it again, but I know you're weaker every time, and there's a limit to what even Beth EFM McClung can achieve. Your last posting, about the wonderful weekend at Cheryl's place, was such a joy... and hardly even touched on your illness. And then your own comment revealed the major effort in time, energy - physical and emotional - it had cost you to create such a beautiful post, full of colour, joy and beauty. You will always be beautiful to me, through your writing, your photos, your choice of manga images... and my own memory of meeting you in the park, feeding the squirrels together. A beautiful woman.

If your time has run out, finally, I wish you peace. If not, and you're still with us, I'll help in any way I can, even though all I can offer is something from the 'wishlist' and a postcard or two.

I don't have to wish you strength - you've got it more than anyone else I've ever met - but I do wish you peace and love. Always.

Lorna, Bob and Liam said...

Our hopes and prayers are with you both.

On a more pragmatic level, some Florastor is also on the way.

More "deep" stuff tomorrow when I'm not so stoned on med.

Love to all...

Steph said...

I am sad to hear this news. I will keep Beth and Linda in my prayers.
- Steph

The Goldfish said...

Thinking of you all.

Neil said...

Cheryl: You're wonderful. Thank you for helping look after Beth.

Beth: Thank you for being such a great teacher. Through this blog, you have opened my eyes to the world of people with disabilities, of course, but also to books and movies I would never have encountered, and a philosophy that I wouldn't have seen without you. And you're part of my family, Beth. I don't mean as an informal announcement that you're my Internet niece, but my Beloved and I really do think of you as close enough to be family.

Linda: I think I'm slightly jealous of you; you are married to one of the most wonderful people in the world. You're wonderful too, since many people (mostly male, I admit) would have run away from a spouse health problems like Elizabeth's. I realize that YOU couldn't do that, but thank you for sticking with and by Elizabeth.

To all three of you, we send positive energy, strength and courage.

Love and zen hugs,
Neil and Maryanne

Lorna, Bob and Liam said...

Florastor and a water bottle plus insulating sleeve were ordered for Beth last night... they should arrive at the PO box within the week.

Love and hope to all.

Aviatrix said...

Dear Beth,
I'm picturing you lying in bed while Linda holds your hand and reads you these comments, these connections we have. They are attempts to break through the bars of the the room and the disease that try to imprison you, and to keep you for as long as possible in the sunlight and the cool breezes, and the squirrel gazes of the world. I'm remembering when I first found your blog and read through slowly from the beginning, not knowing as I read the old entries, and not daring to look ahead to see whether the blog, and the blogger still continued. I'm so glad that you did, and that I have had the chance to meet you.

I want you to live forever, and I love reading your blog and seeing the postcard project cards, but know that we love you for you, and not for what you can produce or what you can say or do. Thank you for sharing so much with the world. It is knowledge that will live on and grow stronger, even when you no longer do.

I hope you are well enough to know that you are loved. And I hope I have some more kleenex, because I've used this box all up thinking about you.

Bonnie said...

Card sent. I really really hope Beacon isn't screwing her over on top of this.

edob said...

longe time lurker, i will live my life to the fullist. you and linda have inspired me beyond beleif.

love loyce

Olivia said...

Hi Beth. I know you are fighting as hard as you can. Just want you to know I am still here reading and sending postcards and thinking about you. Your blog and your friendship have had a big effect on me. I always appreciate the thoughts, views and passion you have to share.

Anonymous said...

Sending love and strength to you all. I've read Beth's blog now for a couple of years but never posted until now. Thank you for sharing your lives.
Beez

SharonMV said...

Dear Beth,
I'm thinking of you, wish I could be there to help take care of you & hold your hand. You have been such a good friend to me and many others. You shared so many beautiful experiences ,trips to Japan, Hawaii, the rain forest, meteor showers & fireflies;and adventures at SakuraCon and ComicCon, famer's markets and artist markets. And you share the hard & ugly truths of your struggle with unrelenting illness and the bitter truth of your encounters with the health care system, the bad doctors who should have taken care of you and the most bitter irony of the uncaring home care workers and the cruelty pervading the whole agency.

You have done so much for all your readers and all the people who got postcards. The postcard project - who else could have accomplished this? Who else would have thought of it? It is an amazing thing - postcards in the thousands, all over the world, to bring a little bit of cheer, caring & friendship.

I love you Beth. You are my friend, no matter what you can or can't do, whether or not I can "talk" with you, or read your writings again. What you have given me, dear friend, remains.

I know you will fight if you can.

Love,
Sharon

Ellen said...

Dear Beth,

I only recently stumbled across this blog of yours. Reading it has been challenging emotionally, but ultimately I have learned a lot from you - not just about dying, but about living. I hope this blog has helped you at least as much as it has helped me, and I wish you and your family the best.

Alex M said...

Please let Elizabeth know that she has had a great impact on me with the postcards she sent over thje last couple of years. I live alone, and knowing someone cares--even if I have never met the person--means a lot. Tell her I think she is a tough-as-nails fighter, and I hope she will be up and typing soon. I will hold her in my heart, and I will be sending healing vibes over the coming days.

edob said...

long time lurker, hugs and best of luck. super hero are you:)

tara said...

I'm so sorry to hear about the current state of things. You're in my thoughts. Strength & love to you all.

tara

rachelcreative said...

Beth
I have a big stack of postcards you've sent me that visibly show how much you care and what a good friend you are. Even more than that you give me love, understanding, insight and inspiration - you help to shape my heart and who I am in this world. I'm a better person for knowing you. Thank you my friend.
Rachel x

Maija Haavisto said...

I don't really know what to say. I haven't left many comments over the years, but I started reading this blog in August 2008 (I think). The next year I ordered Zed which came with a really beautiful Thank You card with the Hokusai wave (I think). I've admired both your attitude and your incredinly eloquent and enlightening writings about e.g. disability, sexism and women's right.

You've been a great inspiration to me, inspiration in the original(?) meaning of the word. In 2009 I wrote a novel about a young woman who suddenly gets ill (likely with Lyme) and becomes a wheelchair user. Disabled people need more heroes, people to identify with - real humans, not sugar-coated inspiring superhumans, disabled characters who both enjoy life and have really crappy days. The novel will be published soon (sadly only in Finnish, though I have an info page in English). I'm also writing a whole trilogy of what I call cripfic. I think the upcoming part #3 is perhaps the most inspired by you - the main character is a wheelchair using multimedia artist with EDS, but she's also a passionate feminist, disability activist and critic of society, someone who fights for others too.

I've read thousands of books in my life yet I'm not sure if any have had a deeper impact on me than your blog. And writing this I feel really stupid that I haven't given back in any way, except maybe indirectly, sharing your thoughts and things I've learned from you with others.

P.S. Linda, you're awesome too. And Cheryl, of course. It's sad that most of the "side characters" appearing in this blog (e.g. family members, paid carers) are much less awesome. :-/