A worker asked me how much IQ I had lost. I thought it was about 50 points, but up to 120 at times. I don’t know how to calculate the loss in how I think, or how I don’t. How I struggle to remember what I do next, or to stammer and find words to express the feeling, the one which means I need to pee.
I rebooted today, or lost a day entirely and all of the memory of what happened before it. Exercise mades me strong, but it also cost me all the corners I cut. I lay burning in pain for 12+ hours while my body did not die but repaired itself, and in doing so made me stupid. The problem with the book Flowers for Algernon is that is stops too soon. Those who read it are saddened by Charlie going back to the past, but it does not tell us of Charlie’s daily life as he must deal with what he knows he was, and could do, and what he is, and must do.
I will die. And I will die fairly soon. The tree of cherry blossoms I saw going out of boxing I will not see again. It was my first time out since the hospital 8 days earlier. Earlier on this blog, I wrote about dying, because I was trying to prepare myself and examine what dying meant, and what I would mean to those around me.
I don’t write about dying very much because I am too busy doing it.
I don’t know when I will wake, or sleep, and I work and struggle to stay alive. When I box and sweat, and push myself, I feel myself teetering on an edge. Today I was to get my hair cut. I had showered, and I was ready, and had spent 2 days getting ready. But I was too sick, and slept 7 hours beyond my appointment, waking from the sound of my moans, and my heart studdering and trembling with agitation to wake me. The body jerks so badly I cannot see clearly. “Is it now?” I wonder.
The people who wait, maybe they have something left to say, maybe not, for they are in a world which to me is like high school. There are those people at work, and those at home and everyone wants to believe that things will remain the same. And the focus is on today and tomorrow and ‘Did you hear about…’, and so the struggle to talk, once every few days, in belaboured, slow strokes, becomes lost in the background noise.
Aren’t you angry that I can love something so much, like the evening light on the buds of emerging blossoms, and yet, will never see it again? That my actions now are so deliberate because I can’t risk it being otherwise? I am. I’m angry. Yet I can’t show it.
The latest loss is strong emotion. I have the emotions but have learned that to feel them, to let myself become agitated or excited means that my heart and heat jumps the regulated limits of what can be sustained. And I lie back, calling for help to bed, because I got overcome with emotion.
I cry, but with a face that is bland, and breathing that is controlled and counted. I groan, as a passenger in my own body yet the center nexus of suffering. This is what it takes to survive. And actions, like boxing, are done without the knowledge of what comes next: death, bed, delirium, revival?
Ebay this week, all week. I worked hard this week on the ebay auction. The first 40+ lots of manga, and some graphic novels are here, with 30+ more to come on Sunday, all finishing next Sunday and posted two days later. Most are out of print lots and several are selling for the price of just ONE of the volumes (for example the Queen’s Knight volume 12 sells for $70, but I am selling all 12 volumes, as New for $50). The volumes are quality and I hope they go to good homes. I will not have time or strength to read them again. I will talk about the sale more next time.
The other thing I have worked on, ever single waking moment is to build funds to pay back Linda and Cheryl what they have kindly lent me, mostly for gifts or postcards. At the same time, I am working on postcards, gifts to send and letters. I want very much to say 'goodbye' individually to each person (which takes planning and effort) but don't want to limit myself to just one 'goodbye' postcard. I don't know if I will live three weeks, three days, or six months (the last is something no one really believes, even me, except on the best days, for a few hours). I want to try and send out postcards that require less stamping, and more stickers (the stamping makes my heart hurt like getting crushed by a Rugby player). I want to write those who are and have been friends. In my Amazon Wish List (you can use the link at the top right as well), you will see that I have added lots of sticker sets, which all happen to be in the ‘buy 4 and pay for 3’ sale. So that means, if you buy Classic Travel Poster Stickers(a fav of mine) and Stickers of WWI and II, Old Time Transportation Stickers (last one!), and Edward Hopper art, you get the last free.
If you scroll down, you will see different stationery sets, from Dark Horse, which I can write notes, as they usually have 6, 8 pages, but in different styles (pin-up girls, dragons, vampires, LENORE!!!!!! and goth girls!). These go with small gifts, or by themselves and that makes Stationery sets $3.75 each, while they last (they all have about 8 left or less). All these items are also 4 items for 3 and can mix and match with stickers or with stationery sets you want for yourself! There are also stamps we use. Every month we try to send out a ‘kids’ postcard to all those 15 and under. The dino set is reported to be the best for use and for reuse, and the other is of Emily the Strange. With Linda and Cheryl’s help I did over 200 postcards last month. I would be very happy with 100 this month, but I can’t do it anymore alone. If you notice more stickers on your postcard, it isn’t that I am not thinking of you, it is that I am thinking of you but expressing it in the ways I can.
I am very ill, and I am an invalid. That I still am able to communicate as much as I do is a blessing that I am thankful for. I know I won’t be able to for much longer.
Linda, who uses 25 post it notes a day, with her work on ebay, and applying for jobs and other spreadsheets, would love the Bettie Page post it note collection listed in the Wish List. The other items on the Wish List range from The Lost Room, a DVD set I want to watch with Cheryl (recommend!), to Wit, Emma Thompson on dying. I want to see if there is a way to do it funny, instead of just ‘this is how it is’. Maybe in getting out the message, I lose the funny somewhere.
There is also the usual manga series I am reading, and authors I can understand, and some things I am recommending for others (like Polar Obsessions, on sale!).
I have been finding and getting postcards, including ones from Alchemy 1977, which are very steampunk gothic, also gothic galore and will delight some.
They have a playing card set I lust and long for (on the wish list), as it has 53 postcards with amazing graphics and blood, soot and grit splattered cards to play. They also run a line of Steampunk, including this pendant Alchemy Empire Aeronautiqua which I want to get as a gift for someone. I am all a quiver to earn the funds for it (and then give it away).
When I saw the line of Alchemy 1977 products I got so excited I gave myself a heart issue and had to call and wheeze and get help and oxygen. This problem comes from a temporal lobe issue: I feel things with culmination, in an explosion of emotion as it washes from my frontal lobe back to my other lobes. Perhaps a time when having so many connections to my emotional center (as females do) is not such a gift (I do however enjoy films so much MORE now, but have a hard time, for a day or so afterward, convincing the self that I do NOT live in a zombie wasteland).
I need sleep now. This is what I do: work, communicate, sleep. I still work toward the things on the last list: panties, socks, haircut, red vines – and now, with postcards to hand, I want to disprove Linda by sending them all out (she said, “You have more postcards than you will need for the rest of your life!” – which is like saying ‘You have more books than you will need in your life’ – even if it is true, a person simply doesn’t SAY IT!). So I will prove her wrong, and send all the postcards out, the rare and the wild, the unique and delightful, all out, and read all the books too…..ha! So there!
1 day ago