2 hours ago
Saturday, April 02, 2011
End stop
Sicker than ER, sick for days. I thought I might have gotten a few weeks. The only stability left is pain, and today I’ll be out of all pain meds: nerve, patches, they say not to come off them with a bang, but I think that is what happens. Anti-D’s out with a bang too, I think a couple half pills on Monday, or one Mon and one Tues. Time for the cascade. I know I live because it hurts too much to be in hell. Neuropathy explained, how dead nerves are turned into repeat transmitter nerves. They don’t work as feet, or legs, but send out a message clogging up the spine, heating the core, the message from hundreds of thousands of ganglion as fast as they can fire is ‘pain, pain, pain’ – the stop being a useful nerve and just send pain signals, for no purpose at all, and that is all they do until they die. Amputee’s have that, some SCI’s. I cannot be in a relationship with intimacy I am informed. I cannot be an ‘equal’, I am told, ‘because you need care giving.’ What a view consistent to ablest doctrine. Because all relationships are equal in all things, money, strength, chores. Because anyone who is chronically ill enough, or even temporarily out of action, broken legs, pelvis, collarbone, then the relationship dies there. I’ve seen and watched people let relationships fall. Well, those will be the last rational thought in my brain for a long time. The two patches, once they are aquired, will take 12 hours before they start to help the pain. I hope the rest of me can survive a pain induced insanity counted by the ticking of the second hand on a clock. Oh yeah, I’m sick too. Well, maybe not then.
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18 comments:
Oh cr--, Beth. How I wish I had the ability to take even a little of your pain and offer you release. But all i can offer are platitudistic words and soft hugs. Somehow, i dont think these could ever be enough. But here goes anyway.
Hugz.
lots of love...
I'm sorry. I'm still here, reading and listening. Wish there were more.
*hugs*
I was so hoping your next post would be an improvement :( I got the postcard, thank you very much, it was beautiful.
Dear Beth,
I wish we all could take a even a small portion of your pain. I can only send my love.
I want you to have your pain meds yesterday! Can Linda call the doc at the ER - perhaps he could issue something to help tide you over without you having to go in again. I know you've both probably have tried everything. Is the delay in getting the prescription or waiting for it to be filled. Is it the cost? Please let us know if we can help.
Sharon
(hugs) Oh, Beth. If it helps, we’ll be here, hanging onto your every word. You’re one of the most wonderful people I’ve ever known. I’ll be holding you in the Light (it’s a Quaker thing) every day. You mean so much to me and I’ll never give up on you.
Love,
Tina
Stupid idea: relationships cannot be allowed to happen for disabled people :(
You'd think these people in the know had never met a human heart and don't know how far they stretch, mine's stretching across the Atlantic wishing I could be a help, even if it was just to give Linda a bit of a break, unfortunatly not an option :(
<3 I hope the pain doesn't take over too much :/
Sending virtual hugs, almost useless but at least they don't hurt. Whoever said that about relationships hasn't a clue - don't most people include "in sickness and in health" in their vows? That doesn't mean perfectly equal amounts of sickness either.
Oh Lord, to be able to help
Also, what sort of idiots have been talking at you about relationships? Sigh...
(((Elizabeth)))
I think that by "relationship with intimacy" the doctors are talking about groping and slobbering with someone in a highly physical fashion, not mental intimacy.
Aside from that...
I'm still here reading.
Oh, Beth. Nerve pain is the ghastliest thing. And I suspect a migraine would be nothing, next to what you go through.
Have you ever met a human being who didn't need care-giving?
Still here, sweetie. Thank you for being a wonderful teacher!
Love and zen hugs, and prayers for less pain,
Neil
My Beloved sends her love to you too, Beth.
And we both love Linda as well!
More hugs,
Neil and Maryanne
I haven't anything more I can say than your other friends. I can't even imagine what you are going through, and what Linda must be going through with you. I can read it... but I can't feel it. I just wish I could do something, anything at all, that would help.
love & peace
This is (more than a little?) premature, perhaps, but Garnet Rogers is playing on my Beloved's computer, and the lyrics for "The Lost Ones" are how I shall remember you when the time comes, Elizabeth NDY McClung.
The Lost Ones
Garnet Rogers
The shadows 'neath the trees do grow,
The sun's embers die away.
The hush of night falls o'er these hills
At the turning of the day.
'Twas on nights like this we'd gather here,
Brief crowded hours to fill
In kinship and good harmony,
In my dreams, I can see us still:
By candlelight, by whiskey's glow,
Each shining upturned face
Would raise a voice, would raise a glass
In those wild and tumultuous days,
When we neither cared, nor lacked for time,
When all the world was wild and new.
Nights heady as a glass of wine,
And our mornings filled anew.
So it was, those wild and scattered years,
We reckoned not the cost,
But those who light burned truest and bright
Would be numbered amongst the lost.
And on chance-met street, or crowded bar
We few, now left behind, would raise
Not a glass, but a rueful brow
At the passing of our kind.
So now I stand beneath these garden walls,
The moon above me wheels.
The stars are cast through the field of night,
And the wind like a drunkard reels
Through the empty gate, the silent house,
The windows dark and blind
But what slips like sand through desperate hand
Is treasured yet within the mind.
For those lost ones still before me stand
All present as of old,
In the tangled skein of passing years
They shine like threads of gold.
So here's a health to those no longer near,
And a glass to those departed
Who yet shine on through our darkening years
The brave and gentle-hearted.
Praying for miracles for you,
Neil
Dear Beth,
You, as you are now, are the equal of anyone in this world. One of the most important things I learned had imparted to Dennis after I became ill, was that I was still an equal partner in our marriage. At the time, one of the major issues was that I couldn't work and contribute financially. Over the years the issues changed. I didn't get better or cured medically - I got worse. Now I can hardly "do' anything to help. I can't even give him the mental & emotional support he needs. All I can do is be here to love him. Love is the great equalizer. And as for intimacy, doesn't it live in the mind? (Hey, aren't you the one working on attaining orgasms through mind-power?)
Sending love to you & Linda,
Sharon
Like everyone else here... helpless, it seems, to do anything but love you and bear witness. And, in the ways possible to us, to be in RELATIONSHIP with you - good lord, what kind of crap has someone been saying to you?
We are ALL in relationship, at all times, with one another. We do our best. We wish that best was enough to help you. Even if it is not enough, it is REAL.
I am here praying with all of my heart that the pain patches kick in quick. I'm praying for many things.
We love you dear.
whoever has been talking to you about relationships has a very limited experience of what real love is.
Sending you love.
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