Thursday, September 04, 2008

My 'angel of mercy', not thinking and some happier times

I would love to say that everything in my life is all peaches now. Instead last night I got my own ‘accidental angel of mercy’, which turned out to be a woman who could tell neither time nor speak English that well. So “Only give the night pills every four hours” and “Give me these pills at 5:30 a.m.” Got turned into “Give me these at 4:00 a.m.!” in her head even though she SAW me take the opiates at 1:30. Plus Linda and I had both talked about how she absolutely could not give them early because after the pain specialist I might be on morphine. So when she started feeding me pills lose on the table at 5:30 a.m. I asked, “When did you give me my night pills?”

“4:00?”

I had her wake Linda and we talked about whether the dosage was high enough to go to hospital. Luckily I hadn’t taken the extra I normally take. So while there was no charcoal and dialysis for me that night, there was not a lot of sleep for us either. The next day and over two hours in getting her dropped, they seemed not at all interested in her giving pills early, ignoring instruction and only checking on me once in 2.5 hours (we instructed every 20 minutes). I was told quite sternly, “Our workers are not supposed to be required to think (at work)!” Which made me wonder, if that is true, why not bring in 8 or 10 year olds, break that child labor law (like so many others Beacon is breaking) and truly have a workforce who won’t challenge them by thinking on the job. Linda has been also told that, “Workers are not to use common sense!” Well, mission accomplished I guess.

This leaves us tired and with no night workers as we found of our three back up night workers, one is back in school and two have been put on day shifts and if they are willing to work an overnight for us, will still be required to show up at their day shift the next morning. Also workers are currently able to refuse to take me at all due to my “complexity” (which sounds an awful lot like AIDS discrimination, doesn’t it?). Except I also verified from two sources that workers can refuse to go to a client due to objection of their sexual orientation ("Me no like gay people!"). So guess being young, lesbian and dying makes me the very person no one wants to go to. Haha, I wish they had that written down in a hand-book so I could get a copy to give to the papers. But I’ll bet it is a verbal policy.

Ironically, I cannot refuse chain smokers, despite having lung problems on my health form. Workers can refuse smokers! Now do you see why I applied to be a worker at Beacon? I don’t have to lift anything, I can choose who I want to go to, there is NO WAY I will be fired for anything, including double dosing opiates or not thinking at all (I might get a bonus for that). Sweet!

Okay, let’s start thinking of nice things. Which means I have to dig around a bit. We had a bit of fresh tomatoes this week. Linda bought them at the Farmer’s market. She smelled them to see if they had that dirt and fresh from the vine smell. Linda loves her fresh tomatoes.

As for me, my joy was this card. I am not (in case anyone wants to start sending my tones of them) a butterfly person. Well I like those walk through butterfly places but generally I think of butterflies and think of young kids and older women. But this card, this card said something different. I don’t know what it was but the butterflies were amazing covering the back. On the front as well there was a host of ‘not your average’ butterfly and not your average colouring.

Inside, I found a gorgeous dark gothic dream. A girl with wings (check!) and ribbons (double check) and things of corsets and bows, and hair and the colors. It was something between the dark fairie and the gothic otherworld and I just sighed. Beauty. It was a visual dream. Someone totally got me, the got me the perfect card. Which of course upped the anty and now I had to find a perfect one for them back.

Here are a couple of the backs we stamped from last week, hopefully most of the people have received their cards by now so I won’t spoil anything. These are just starting into stage 2 (wood and rubber stamps, not yet dried). I have this new pre-raphealite stamp I love, particularly under the old oak tree, it just seems so very William Morris don’t you think. The scroll of stars and sky is freshly pressed and the black ink is drying on the slicker Japanese paper – we dry the cards for 4-8 hours.

This one has some similar elements but again nothing beats a bloody fingerprint and a microscope. Perhaps this means I am longing for Bones Season 3, which won’t be out for what Cheryl and Linda tell me is a LONG, LONG time. ARG!

Anyway, I am off to try and start something going with postcards, get something happening, start a list, make one and get something concrete going in my hands, if my hands will cooperate this time of night. Too much anxiety and phone tag for today, I want to make a card and send it off. Envisioning a task, preparing for it and completing it. That’s what I need. Speaking of which, I hope we can all think of Collette, who comments here, as she will be doing the 60K walk for Cancer in Toronto starting tomorrow I believe. She’s the one who got me inspired to do the Terry Fox Run/Walk/Roll on Sept 17. Thank you Collette and I wish I could be there cheering you on in person.

Summer is closing off (hooray, I can leave the apartment!), so I guess if we want to finish off our projects, we better get to it! I think that many a male, or female will be in the garage or shed or with some tools somewhere this weekend, getting that stuff done. Fall comes, and we want to be tucked indoors drinking mulled wine – well except me, I will be out finally getting outdoors getting frostbite as we find out tragically that my body is now COLD intolerant too (oh please, I hope that is a joke!).

Cheers!

23 comments:

cheryl g said...

So does Beacon contract their worker training to Dr. Kevorkian? I would think a couple of the job requirements for applicants would be a grasp of english, common sense, ability to critically think and ability to understand and follow directions. Guess not. It's amazing... these people make as much as I do with a fraction of the training and education I have had.

Mmmm fresh, garden tomatos - few things in life are better. I really enjoyed the market.

yanub said...

What, your very own "angel of mercy"? Not good enough to be killed industrial style like everyone else, now, are we? (Oh, Beth, just in case you having a head problem, that should be read with gentle teasing)

Seriously, I can't believe Beacon. I can't believe they are the only agency overseeing aid workers. I can't believe that you have no control over who comes into your home. I can't believe that they have a right to discriminate against you. I can't believe any of this in the same way that, witnessing a train plow into a school bus, one can't believe the horror passing in front of one's own eyes. No, no, it can't be true. But it is, and there seems nothing to be done but bear witness to this slow motion train wreck.

Or is there? Maybe I can at least join you in screaming bloody murder, because murder it is. I accuse Beacon of willful neglect with intent to kill Elizabeth McClung.

OK, deep breaths, slow breaths....pretty butterfly lady. Tomatoes. Linda looking all cheery. Fun stamps on the back of postcards. Yes, there is goodness in life.

It's just too fucking bad Beacon is on a mission of "mercy."

shiva said...

Oh gods, Elizabeth. Yesterday, i didn't comment, not because i didn't read or didn't care, but because i was too moved by your post to think in words.

Is Beacon the ONLY home care agency in your area? And does Canada have an equivalent to the UK's Direct Payments and PA system?

Fresh tomatoes... yeah, they are cool. I have a post from... probably about this time last year, about growing heritage varieties of tomatoes. That tomato-plant smell is incredibly powerful and intoxicating (and unmistakeable).

I don't normally like... frilly, pretty kind of things, but i do like that gothic butterfly angel girl postcard. In fact, she looks rather like a dark angel of vengeance, ready to rain down fire and brimstone on the likes of Beacon (you can imagine the ribbons are, like, whips or tentacles or something...)

Or the slake-moths from China Mieville's Perdido Street Station (you read that? i think it's quite you...)

KateJ said...

Words fail me when it comes to your so-called care package. I can only think that the wages for care workers is so appalling that they just can't get anyone to do the work except for incompetents and people who can't get any other kind of work because the don't speak much English or can only work weird hours or whatever. In fact, come to think of it, care work is always badly paid. Minimum wage stuff over here at any rate (I know, I've done care work myself). Why, I ask myself (rhetorically, that is) when it's one of the most important jobs around - if you define the importance of a job by how much it reduces human misery and increases happiness and well-being. But then in our society that isn't how the importance of jobs is defined, is it. But nothing would excuse giving powerful medications like opiates at the wrong time. I mean that's like getting an insulin dose wrong. OK, words didn't fail me at all, did they?
Change of subject: I loved your pre-raphaelite stamps... do I gather you are another fan of William Morris? I've been an admirer for 40 years!
...and where is your radio interview? I can't find any BBC programme that it might have been in?
Hope today goes better for you. Love & peace.

SharonMV said...

Dear Beth,
I wish I lived nearby - I could be your night worker. I'm up to 4& 5 am lately & I could certainly keep your meds on the proper schedule. And understand instructions. Not to mention actually care about you. Aha, I've found a job that I could do, working for Beacon. Where are the crusading investigative journalists when you need them? It's terrible that you have to deal with this company that seems to have to answer to no one.

Love the butterfly card - the colors are gorgeous as is the winged, beribboned goth fairy. Your cards seem to be getting even more complex in imagery. I really like the stars & sky stamp.

I was just thinking about fall - wishing it were here. October is often still hot here & as last year can be a season of wildfires. But maybe cooler weather will come early this year.

Good Luck to Collette!

Sharon

Queen Slug said...

I'm sure if there were other options besides Beacon you'd be using them but it just boggles my mind that they are the only option. I have tried 2-3 times to write this reply, but words don't give credence to the level of shock I have at what passes for care there.

As for your butterfly card, purely fabulous!

FridaWrites said...

I actually think my kids would do a better job taking care of you, except that they couldn't stay awake that long.

Those are some gorgeous stamps--I like the tree, the constellations, the William Morris, well all of them.

Neil said...

I never thought I could believe that the USA might have better health care than Canada.

I pray for a special place in hell for Beacon's managers.

Zen hugs,
Neil

Lene Andersen said...

If Beacon hired children, you'd get your damn meds on time - tell a child to give the pills to you at 5:30 and you'd get them at 5:30. FUCK!!! I can't believe the shit they put you through. And shouldn't you think the workers would be paid to use common sense? isn't common sense part of being a caregiver? The agency doing my attendant care once disciplined a worker for not using common sense, fer fuck's sake!

I have to go breathe calmly now. Seriously. Would it be possible to have a chat with the Minister of Health? or one of his/her flunkies? I mean, Linda works for the government - can she get in through the backdoor to someone who'll address this? This can't be right. it just can't be.

ARGH!

Lene Andersen said...

p.s. sorry. Was on such a rant that I forgot about the other stuff. Love the stamps, butterfly lady very, VERY gorgeous.

Anna said...

HI

Aren't there some other careworking firm, since I am not in Canada I wonder, is the carecompany private or state/community based?

Horrible, though I've been that kind of careworker. I worked for 3 months then realising that not remembering how many pills I had given the persons I worked for wasn't a good thing. So now I recommend books and answers question, if I make a mistake thank God the outcome isn't likely to be lethal.

LOVE THE CARD.
Really gothic esquisite.

Lisa Moon said...

You know, when I read something like this, I feel so enraged that I can't formulate something remotely composed to write down here.

It's criminal (or will be with these idiots who don't understand enough English to comprehend dosaging).

I might have said this before, but I am a trained and experienced support worker, including a 'basics of meds' course I took. While supposedly not enough to do medical home support (supposed to take a VIHA course first to be allowed to do this) I KNOW that I could do better than these morons.

If you don't mind that I walk with a cane most often and oh, yeah, am not really able to assist with lifts and transfers, I AM able to a) tell time, b) understand medication schedules and c) follow your directions very, very carefully. What's more, I am non-hetero, respectful and honest, too.

I'm quite confident that despite my own now-disabled status, I would be a thousand times safer and more reliable than these so-called 'carers'.

Happy to forward my resume upon request. :D

Victor Kellar said...

Thanks for thinking of Collette, the walk starts tomorrow (Saturday) but they are having an orientation this evening (Fri)

I will be using my blog to keep track of her progress

Every Beacon posting you write just leaves me with my mouth open. We ran into some perfectily idiotic policy issues with my father in law's care but clearly, you are operating on a whole other level

Veralidaine said...

Aieeeeegh! They aren't supposed to think, nor use common sense, nor care, nor show up on time, nor do the tasks they are assigned... so what ARE your "careworkers" supposed to do? I can imagine the job description already.

"WANTED: CAREGIVERS, NO EXP NECESSARY.

Apply in person. Mirror test required. (We'll hold up a mirror to your mouth-- if it fogs, you're hired)

Requirements:

-Pulse
-Frosty glare

Responsibilities include:

-Perform tasks, if you would like to do so. Alternately, nap and watch television.
-Check at least nightly to ensure clients are alive.
-Call coroner if client is not alive.
-Administer medications as desired (literacy not required; pharmaceutical labels rarely have important information)

Please submit a resume, or a cartoon or something, as we won't be reading it. Be prepared to demonstrate ability to repeat the phrase, "That's not my job," repeatedly. Selective hearing loss or poor information retention skills a plus.

Carapace said...

You know, when I worked at MHMR, I typed up a lot of care vouchers. Our system involved people getting a (tiny, tiny) budget for home health care, that they had to make stretch across X hours. But by cracky they could hire anyone they wanted, which was good, because at those wages, you weren't getting anyone but family and friends who would have been helping anyway. Oh, and the whole budget had to be used, or it got cut the next month.

I never thought I'd be thinking of that as a better way to run home care. Yeesh.

Also: tomatoes? At this time of year? You wacky Canucks!

Perpetual Beginner said...

If we didn't live on the opposite side of the continent, you could have my 8 & 10 year olds. They don't smoke, they're excellent readers, and they can both tell time. Nor do I think your lesbian-hood would faze them, though you might end up having to explain some of your manga!

In all seriousness, Beacon's attitudes about their workers would be ludicrous if it weren't so deadly dangerous. My sons would be better quality workers, and that's a sad commentary considering neither of them is out of elementary school yet.

Kathz said...

I can't think of anything to add on the subject of your (un) care workers. But I hope you manage to get out again now that summer's over.

love and best wishes

Elizabeth McClung said...

Yes, Beacon is sort of amazing when the HEAD of Victoria says that they don't want workers using common sense. Okay! And while you may mock - actually they will PAY you $8-10 an hour to sit in a 6 week course and then you get $19.69 an hour - if you don't do overtime, most do, so that is $30. So yeah, I am sort of thinking of hiring a bunch of 10 year olds becuase a) they would LOVE to stay up late and b) they seem to be able to tell time!

I am off to sleep now, I will be doing individual comments when I get up.

Laura said...

Hey people look what I happen to have found. Got any idea's what we could do with this information?
There is a really interesting addy at the bottom.

Mail:
Deputy Minister's Office - Health Canada
Brooke Claxton Building, Tunney's Pasture
Postal Locator: 0906C
Ottawa, Ontario, Canada
K1A 0K9

Fax:
(613) 952-1154

E-mail:
dm_sm@hc-sc.gc.ca


Toll Free

1-866-375-TONY (8669)

Ottawa Address:
278 Confederation Building
Ottawa, ON
K1A 0A6
Phone: 613-944-7740
Fax: 613-992-5092
Email: Clement.T@parl.gc.ca


Mail:
The Honourable Tony Clement, P.C., M.P.
Health Canada
Brooke Claxton Building, Tunney's Pasture
Postal Locator: 0906C
Ottawa, Ontario K1A 0K9

Beacon
Home Support Saanich

2723 Quadra Street
Victoria, BC V8T 4E5
Phone: 658-6407
Toll Free Number: 1-877-658-6407
Fax: 658-6417

CHW voicemail: 658-7249

Hours: Home Support offers care 24 hours a day, seven days a week.


* VIHA Home
* Client Relations
* Contact Information

South Island

Phone
(250) 370-8323

Fax
(250) 370-8971

Email
clientconcerns@viha.ca

Mail
VIHA Client Relations Office
Begbie Hall, Room 321A
1952 Bay Street
Victoria BC V8R 1J8

Dawn Allenbach said...

The Internet (or Blogger) ate my comment. Stupid.

Tired. Will retype tomorrow.

Elizabeth McClung said...

Just a warning - use the Stuff on the MP and that all you want but contact with Beacon will be like talking to the twilight zone. First, there is one person in charge of Victoria, K. who tried to trick me into making agreements AFTER I told her Linda had power of attorney and I was just back from hospital and confused (and she lied about what Linda had said - so personal opinion low - Linda is working with her). Okay, you won't get last names...of anyone. They will put you on hold and then send you into some sort of phone message service which won't respond. There isn't anyone other than K. if you go through Beacon for Victoria. K. is the one who told Linda workers aren't to use common sense, K. is the one who told Linda the purpose of Beacon is not to care for clients (people like me) but to protect workers. However her boss, Isabel McKenzie (head of Beacon) is ruled by a board of directors, you write directly to the board of directors, you might get some luck - but since Canada has no "best practice" for care workers, VIHA has NO BOOK for care giving outlines and Beacon, if they have a book is keeping quiet about it - probably only has a series of emails, from Isabel to K. - but could those be requested through the ministry of information act? Dunno? But asking an MP why workers are allowed to refuse to serve lunch to a disabled person the government is paying $20 to have them do so becuase they are gay? Very good questions. Because they have epilepsy? Becuase thier condition "scares" the worker (kind of like AIDS used to). All good questions!

Raccoon said...

perhaps you should of gone to the hospital. Told them that your caregiver gave you the wrong drugs at the wrong time and might have given you an overdose. See if the caregiver could be censured? Would that, maybe, put a crimp in Beacon's pipe?

Dawn Allenbach said...

I am SO not going to start my rant on Beacon, though I will say again that I wish you and Linda could move to the States. Bring Cheryl and Neil and his sweetie along, too.

I'm not much into tons of frilly butterflies either, but that card is beautiful.

YOU HAVE A MICROSCOPE STAMP??? You HAVE to tell me where you got it! The biologist is geeking out.