I’m not joking about all those Lottery emails (I didn't give them my info), there is even the EU Lottery which I have won. Sadly, none of them know how to use a phone? So for all the people who are very jaded and cynical when you get the emails with the title “Urgent” and start, “I am the Financial Minister of the country of xxxxxx, and we need to transfer 132 million dollars into your account.” I have a NEW message.
Here it is. I am a very shady individual who has a LOT of drug money and I need to launder it through someone who is willing to take a risk for a 10% share. If you are interested, please email me to get my address and then sent me $10 to show your interest and for the one minute of my time it will take to explain how I will launder this money through your banking and credit cards (Hey, I am shady AND greedy, I don’t do nothing for free, get it!). Once I get your dough, off we go!
See, sadly, not only did I probably just break several federal and international laws with that piece of irony. But I think I will probably getting people sending me $10 for the next two years going, “So, how much are we going to launder?” If you tell someone they get something for nothing, I think people have figured out that isn't happening. But considering the numbers of people watching Weeds on TV, I think a great many North Americans would find laundering money, as long as they got their percentage, worth the risk, and so sadly, you do not catch more flies with honey in this land, but with severed horse heads in the bed (Godfather film reference).
The second is, if you haven’t guessed it by now, I am still in unbelievable amounts of pain. In fact, I am probably going to have to go to my doctor soon for more pain meds and have another LONG lecture about drug addiction. Well, if I ever felt high or total pain relief, that might be an issue. What he SHOULD be giving me is a long lecture on STUPID addiction. Because while the 10K was inspirational and all, did I need to move around so much in the days afterward? Or decide that the next morning was a good time to start rearranging all the piles of books and furniture in study? Or try to restock the fridge by myself? Linda isn’t home much so I am free to be stupid a lot. Of course I never tell you, “Today I went and tried to refill the fridge with Gatorade holding my body upright with the walker, and WOW does my shoulders and back hurt!” Because that is a blog that makes me look like a moron who can't figure out that maybe if I let my muscles heal by letting OTHER people do things for me, instead of trying to do it all myself, I would get better.
See, now I am going to get a BIG lecture from my readers. Hey, that pile of Manga NEEDED to be moved! Plus, I didn’t know the home care person was coming last night so I HAD to help clear out the study of stuff, so she could sleep there. See, I am sure I still have a LOT of 10K race pain, but I think I might have some STUPID pain mixed in there. Plus I am still working and typing 10 hours a day hunched over a computer instead of leaning back and watching things which probably isn’t helping. Still hurts all the same. And like YOU never did STUPID when you were in pain?
So I decided that I am going to do a mental wander through a few places. First, it is BACK to Hurricane Ridge in America, a week and a half ago (I counted the blog entries to figure that out). Because there was that sort of 90 minutes which were pretty good. First off there were DEER. And while Maggie and Cheryl have seen enough deer that they want to see “When DEER ATTACK!” for Linda it was more of a “Look! Look! Deer!”

So after I went to the bathroom and saw tje surreal gift shop: surreal because a) I don’t expect to find a lot of wineries on the top of a mountain called “HURRICANE RIDGE” but they were selling a couple different ‘local’ wines. And b) Either Maggie or Cheryl called me over and told me there were “wooden postcards”. I was thinking they would be like the incredible thin wood postcards from Kakunodate, Japan which had a woodblock print on it. Instead I found a quarter INCH THICK piece of wood with a coloured plate (machine mass produced) which said “Hurricane Ridge” and it was glued on. Was I supposed to send this CHUNK of WOOD as a postcard (after paying $5 in postage)? So then the reader might…..throw it on the fire after reading to keep themselves warm? (“Hey Martha, no need to bring in some more logs, Elizabeth just sent us another US Forest Service Post Card!")
Anyway, Linda went scampering off to look for deer and we stayed behind and made sarcastic comments. But she did find a group of about three deer or so in the woods, and got a picturesque nature framing of one.
Of course, my childhood, so traumatized by Bambi, looks at this picture and then immediately hears the blast of a shotgun with a somber male intoning, “MAN was in the forest!” with the sick knowledge that some lovely deer was DEAD! But actually since it was four WOMEN in the forest, Bambi’s mother did not die today. And Linda came back and then decided to make poses on a snow/slush pile. I think this is where I talk about how wonderful it is that after so many years together I haven’t the faintest idea what she is thinking or doing. But the reality is, What is she doing?
Has she decided to reenact scenes from the film Sunset Blvd. on the top of Hurricane Ridge?But then who I am to talk because a few minutes later I am trying to enact a “magical transformation” from an anime.
As you can see in the picture, I am not only waiting for the sparkling stars to transform me into some brill costume with extremely short skirt, but I have opened my hoodie so the new DD cup breasts that come with BEING an anime girl will have space to erupt! Yeah, so what if most girls give up 5, or 10 years after puberty. Not me, I am STILL waiting for the breast fairy to come back!Anyway, before we leave here, which was about when the trip turned pear shaped, let me tell you an important lesson that I, in fact, I think WE have learned. That taking someone who is oxygen conversion compromised up to a HIGH ELEVATION where there is less oxygen and it is harder to convert is probably not going to be on our future plans. So, that whole “Doing the Alps on one Lung!” tour is being cancelled for now! Too bad, I had a lecture series planned after that where I tell people that a lung is like the mental fears in their own mind, the ones which stop them from getting raises and from achieving the life they want! And by facing my fears and repeated passing out before being med-evac lifted out in a helicopter, they too could be like me and by following my example, they could be homeless, or OUT of a job. Thank you, please buy the book at the door! (yeah, still wacked out of my mind on pain, why do you ask?)
I also went to badminton last night.
Which was supposed to help me. It did: it helped me feel depressed. Because I lost every single game. Admittedly I kept getting the same partner and I once politely said, “How about we mix things up and I go with them” and he was like “No, this will be more even and fair.” While my brain was going, “I’ve lost three times already and you think things are even?” But that is just the competitive aspect of me I guess.Truth is I just had one of those evenings that sucked, a lot. I couldn’t seem to connect or when I did, the people just seemed to play around me. I felt useless and frustrated and that is what happens sometimes. But I still got out there and played (notice my partners' concentration!).
So I guess the theme of this memory lane trip is that just because things don’t turn out perfect, doesn’t mean I’m not going to keep trying (like I am here trying, missing the birdie and then my chair fell over).
Actually, Linda who did work on her computer for the government most of the time probably had more fun that I did. And it hasn’t seemed to improve my circulation. I just wanted one really nice fun game. But even with two females, they just played long and over my head. Admittedly, one of the females actually was dissing the other girl on her own team (Girls aren't nice ALL the time, get over it). Oh well, next time.Um, I had a couple seizures today, including one where my care giver said I “shook” for five seconds. Which means….not long enough to make ice cream? I dunno. I have had the care agency wake me by phone this morning to tell me they were sending ANOTHER new person, so after training my ‘night worker’ from 10:00 pm to 11:15 pm, I went to sleep and got up to train and supervise a new day person for a couple hours.
Also, I got an email from three places wanting to advertise on my site, including one saying they were DIFFERENT because they did Canadian content and thus I could make money AND help Canadian businesses. So I wrote them back an email and said, 'hey, I write about disability and since Canada HAS no disability act, and I am only interested in being a partner with an organization which will represent ALL Canadians, and the recent survey showed that 1 in 7 Canadians are disabled…….what percentage of your organization is dedicated or donated to disability or heath organizations?'
I have not heard back so I guessing I am not a good “fit” (as in, being greedy would be a “good fit”).
I also got an email from the people doing Creature Discomforts, done by the people who do Wallace and Gromit. They felt that as they had these ads which were part of a campaign to “change attitudes to disability”, they wanted me to promote them on my blog. So I spend an hour writing them, explaining that we had all looked at high hopes when the FIRST series of Creature Discomforts came out. But most disabled people/PWD were disappointed by the series as for example, a turtle character says because he can’t get into a sweet shop to buy sweets (due to poor accessibly) has “lost the will to buy sweets” (meaning, we are sad pathetic characters).
I pointed out to Leonard Cheshire Disability (who paid for the ads) the fact that people with amputations now use this NEW thing called a PROSTHETIC! And don’t actually go around on retro crutches like it is 1917. And indeed the assistant editor of the BBC magazine OUCH! uses a prosthetic and doesn’t actually sit around talking about losing the will to buy sweets. And that while they say their ads want to change attitudes to disability, is the change so we are seen as even MORE pathetic? Or just more stereotypical?And that was my day.



13 comments:
What, you actually responded to the Creature Discomforts email? I got the same one. I mean, I suppose it is the same one. I haven't even read it. What do I know of Creature Discomforts? I don't watch TV, and what TV I do sometimes see, well, this is the USA. We only see things British if they have first been given American accents and the background set in Los Angeles. We have to be protected from foreign contamination, you know.
You think you have some STUPID pain mixed in with your 10K pain? Hey, stupid accounts for the bulk of mine. If you'd like to increase your stupid percent in your pain mix, let me know and I'll see if I can send a shipment to Canada.
I love the badminton picture of you just before you fall over in your chair. Who knew that badminton could be such a rough and tumble game?
So does the early post mean you are actually going to bed early tonight and get some much needed rest?
Yeah, I didn't think so...
I will try for a funny, clever comment later. Right now the vertigo is getting worse so it's more drugs and off to bed for me.
Beth dear, your stupid is not going to influence me to be stupider. I'm also not inspired to invest in your get rich quick scheme. I'm just too busy helping out my good friends in 90% of the governments in Africa. Sorry... Or not.
But I WILL fall for your One Lung Alps tour; I'll cycle if you'll wheel. :)
10K + Housework + Badminton = stupid? Maybe, but it's your special brand of stupid: Beth's Patented Proof of Being Alive Stupid.
Love and hugs, dear. Always lots of love and hugs,
Neil
Creature Discomforts was so utterly disappointing. Put me right off Leonard Cheshire. See - they really DON'T want you to feature it on your blog because it's not going to be a good PR exercise ;o)
I do many stupid things. Often I'm not concious at the time they are stupid or I wouldn't do them. Sometimes I KNOW they are stupid but a part of me needs to do it anyway.
And just sometimes I do something stupid and it turns out to be stupid at all. it turns out I CAN do this thing without dire consequence. The doing of stupid things is not an exact science. But thanks for reminding me not to judge others on their stupid things either.
That's way too many uses of the word stupid.
What I want is an electric bike with massive adult stablisers ;o) Then I can go steaming through the streets without falling off (hopefully) even if I don't have the brain to be not run into cars. Maybe this plan needs more work ...
And a highly entertaining day that was - at least from this end! You write funny when you're hopped up on pain/pain meds.
And speaking of which. When your doctor starts talking about addiction, could you remind him from me that you're freakin' terminal and that maybe addiction doesn't so much matter in that situation (please imagine that last sentence with an ever-increasing screech of a voice. Let me at the twit, will you?? I feel the need to edumacate him a little).
And snow? SNOW??? Deer lord (yes, I wrote 'deer' on purpose and laughed like a hyena doing it. I think I need more sleep). Brrr. And you guys look so happy about it. I'm traumatized - need to go out into the sun and greenery for an antidote. Brrr.
(I'm not even touching the stupid pain. I've been there. Last week, last month, yesterday. Sing the homer song with me "I am so smart. S M R T".)
I am actually quite disturbed that anyone failed to see what was wrong with those 'creature discomfort' adverts.
Ironically I think some of the adverts in the 90's were better, even though we assume people were less enlightened. The best one was a woman walking to 'Sarah's house. The narrator kept asking 'are you ready to meet sarah?' while telling you all about her life and her skills and achievements. At the end of the advert we see that she's actually someone with severe Cerebral Palsy, and the narrator asks 'Are you still ready to meet Sarah'?
Very powerful but I think it worked because you got the clear message she's a person first and her disability came last, and why should you be unwilling to meet her now you know she's disabled when she's the same person who was described to you two minutes ago?
I'm not going to lecture you, even though I have certainly never done anything stupid while in pain myself. (Hey, I parallel park better with a brain tumor than most people parallel park sober...or something. The trick is not to know that the blinding months-old headache you shouldn't be driving with even though no one else at your house is going to do the grocery shopping actually derives from a brain tumor. Once you know it's a brain tumor, it totally saps your parallel parking mojo, believe me. Plus, other people take away your keys and suddenly become willing and able to grocery shop, just like a magical anime transformation only with sparkly canvas bags. But I digress.)
I am going to make one small correction, about prosthetics. The fact is that many people cannot wear prosthetics even though they are modern-day, single-limb amputees. I won't go into such details as fit, function, skin sensitivity and stump size here, and of course in a nation with universal health care coverage concerns about the tens of thousands of dollars that each prosthetic limb costs are not the factor that they are for people with private or no health insurance here in the states, but the fact is, for many, many reasons, many, many amputees do in fact use crutches, wheelchairs, and other things you'd think a good prosthetic could obviate.
However, you are right that even so we are not necessarily pathetic or helpless or likely to lose the will to eat sweets (unless we have lost limbs to diabetes, but that's a different story altogether). My dear friend and esteemed correspondent Ms. AmpuT tells me that she can carry a full glass of champagne while crutching about, an achievement which puts me in awe. Also, she has hiked volcanoes and such in Hawaii on crutches.
Not prosthetic, no, but also not pathetic. Not at all.
P. S. -- I would like to have seen footage of Linda scampering.
warning - this is a topic i feel very strongly about - rant coming...
ADDICTION IS IRRELEVANT WHEN YOU HAVE PAIN!!!
aaarggh! I am so pissed off that you are getting such shitty pain treatment from your doctor. Addiction (or more accurately dependance and tolerance - both medical conditions common to most medications) can be dealt with when the source of the pain is resolved. Unfortunately, that isn't going to happen for you so damn it you need the meds.
The line that most pain patients get is that they can't have the strong meds because they aren't terminal - and somehow you still aren't getting them.
From what you have written I think that you have been given Tramadol as your rescue med - that is ludicrous! Tramadol is called a 'weak' opiate for a reason - it isn't strong enough for the type of pain that you are experiencing.
My pain isn't nearly as bad as yours (though it is significant) and I take 300 mg of long release tramadol every day and have dilaudid as a rescue med. All the Tram does is adjust my baseline pain to allow me some daily function but I do end up taking additional meds quite often.
A doctor should never leave their patient in pain severe enough to make them hallucinate! That is cruel and frankly should be considered malpractice!
if it is possible, ask your doctor to refer you to a specialist if he is not comfortable rx-ing the level of medication that you need.
My partner (also a pain patient) sees a chronic pain specialist here is victoria - email me for his info if you want to try for the referral.
okay - i'll try to calm down - but that just really pisses me off. I've watched my partner go through hell with uncontrolled pain and it is just torture when there are things that can be done.
thanks for the venue to rant... love - Christina
Spiningtransformer, that is something that has bothered me, that Beth's doctors have demonstrated a negligance to her welfare that, in the US, would be grounds for a lawsuit. Are Canadian doctors sheltered from suits based on their negligence or incompetence? At what level does responsibility actually kick in? Would a sternly worded letter from a lawyer regarding failure to adequately treat be worth anything in kickstarting some actual practice of medicine instead of this three-card monte Elizabeth's "providers" have her playing?
Hrm. Whenever I think of Bambi, I think of two things: Flower & Bambi meets Godzilla parts one & two.
I've seen the Creature Discomforts on Youtube, I think. Aren't there 5 or six of them? I agree about the prosthetics. I mean, I've seen stories about a horse and a couple of dolphins getting prosthetics...
Pain drugs: Better Living through Modern Chemistry!
I need the name of a pain specialist. Not exactly wisdom - I will be back tomorrow promise, just....I have a very hard time focusing right now, be better in the morning. I am sorry, but I will respond, honest, and I do appreciate the comments particular on drunken fireworks day....I mean July 4th.
Yanub: well, obviously they didn't think it worth responding to as I didn't get anything back, which lowers my respect for them further - they are junk mail people who "support" disabled people but don't want to hear from them.
I am sure that I will be able to figure out ways to increase my stupid pain mix, but thanks, if I need more, I will turn to you for advice.
Linda loves that picture too, I can't figure out why, maybe becuase I am so, I dunno, total commitment.
Cheryl: I went to bed early, like YOUR kind of early. Hope the vertigo subsides.
Neil: Darn, at least I am HONEST about how I am going to be a cheater and a crook! So send me your money!
I just figured that with all those stupid 'inspirational' tours out there I need to whip up a book and come out with one too. I am reminded of Geek Love where the character Arto who was born with flippers, convinces people they would be happy, like him (he hates all humans), if they juts amputated thier limbs and starts a new religion. I can't tell if I am frustrated by the people who sell temporary disability as a "eye opening, self motivating experience" or just the overwhelming human need to find an easy fix out there for $40.
RachelCreative: yes, high budget, reach all age groups and then hey are just pushing stereotypes. Sigh
I like that doing stupid is NOT an exact science - I need a t-shirt that says that.
Maybe you need a bike trail, is there one near you - then you can do your electric bike and NOT run into people.
Lene: Well, the doc and I will come to some understanding soon becuase I will explode at the next lecture since I told him that he already lives with us, since I think of him in each pill I take, him and his stupid lectures. What is ironic is that IF I went out AND got some heroin AND became and addict, I would be treated better AND get high pain killers as they "wean me off"
It was snowy and cold and winds about 40 mph, but for me that is good. Snow still just in driving range here.
Gaina: I am interested in this advert about Sarah. Though again, it would be good if they had some sort of follow up to let us get to know Sarah dunno.
Sara: True, now I am educated on the varieties of prostethics and of course some people would use different devices and the same person would use different devices in the course of a day/month. However, I don't think that the diversity of amputee experience was really coming through in this commercial, is was just I can't get into the sweet shop becuase it has two steps. Which as a person who has dragged myself with my arm up 10 or 20 or 30 steps, or dragged myself with one arm when the body is paralyzed and once tried to drag myself to the bathroom using my CHIN, I find the message a bit well, DIM. Like, if you can't get around with crutches, find a better system or sit down on the steps and then someone to help you up inside the shop or I don't know but geez, this is certainly not a person who climbs volcanos....and if that is the reality, then they should show someone on crutches doing that. Or simply be more realistic and show them hopping around looking for underwear because they are too busy/lazy to use assistive devices and figure it worth the risk.
Spinning Transformation: I am going to email you because I do want the referral and You have opened me up to the solution which is to stop talking to my doctor at all and bypass him to someone who doesn't get all nervous and figity and tell me where to buy pot but won't sign the form saying that he would prescribe it if he could which would get me into the legitimate medicinal pot places. I am tired of this crap and honestly just want to shot his foot, then give him some asprin and remind him to see me every week and if he takes anything stronger, well, I am going to have to lecture him on addiction. Because like having a flu, because it isn't happening to him, he doesn't seem to GET IT. So, yeah, it makes me want to make it happen to him.
Yanub: I can only sue the doctor if I believe they are doing this intentionally, I CAN file a complaint for malpractice but in BC it is weighted FOR the doctors - in fact the Victoria Doctor's association is an association which has a pool of lawyers to make sure doctors don't have to deal with this stuff. And while leaving say, your cell phone inside a patient is easily malpractice, saying that you are waiting for the specialist input is very hard to charge as malpractice. Collectively it is, and everyone has decided to do "My inch" and no one wants to be responsible but much like the people who follow the letter of the law or know what grey area of law they can go into - they would be hard to prove as malpractice, just insensative, idiotic, selfish, and uncompassionate people. But any complaint would mean the removal of medical services while the complaint is being investigated (which MIGHT be a letter - but in BC, only the doctor knows the complaints against them, not even the complainant will be told anything beyond, "The matter has been taken up by the college of physicians and surgeons") - unless you can make a human rights case, which is hard to do while you are alive, you need to show callous negligence which leads to a permanant and preventable death or incapacitation due to religion, race, gender, orientation, etc. And if anyone couldn't prove that Doctors are pricks and condescending and don't take female complaints literally or seriously to date, I doubt I am the one to do it.
Raccoon: I am ready to be shown the better living, still in agony.
Post a Comment