Hey everyone! Today just wasn't my day.
First I had pain hallucinations 3.5 hours after gong to bed and needed the second BIG opiate pill, which, when it ran out four hours later, I had to get up. Only the pain was making my hands shake so bad I needed the little opiate pill just to use my hands, so had to be fed that.
I was looking forward to going to a “stamp” shop that sold groovy wooden stamps you ink and then stamp on Postcards (always trying to give my readers the ‘added value’), but after getting ready an hour and getting there, it was closed (SUCK). I got home and started work on the postcards but it was like I couldn’t get anything to mentally work, and 40 minutes later…..one postcard done. And I had a ton of heart erratic beats (which means OW!)
Soon after this I bit my tongue as I had what Cheryl said was petit mal seizure followed by a Grand Mal or a series of 1 to 3 seizures.
So I’m pretty fucked up right now and may not be able to communicate for some time.
Posts
7 hours ago
24 comments:
So sorry Elizabeth. Please take care of yourself. Take the time to do what is necessary
thinking of you...very envious of the hike...those pictures looked beautiful.
/hope the pain eases up
Hello Beth: I hope your tongue's okay.
The seizures suck. Rest as needed, and maybe Linda can keep us up to date as needed? Jut progress reports, so she doesn't have to have you edit, and only if you're not up to writing tomorrow.
Sleep well, Beth dear. We're thinking of you, and sending positive thoughts.
I'll put a little something in the mail for you tomorrow. I was going to send it this afternoon, but plumbing got in the way.
Zen hugs!
Dear Beth,
I'm sorry you had such a bad day. I know it's especially bad for you when your communication ability is affected. I had a very bad pain day yesterday (nothing serious, just very painful. I've been dealing with septic bursitis (inflammation + infection) in my left knee since last month. Thought the antibiotics had got rid of it, but after my IVIG on thursday, it started acting up again as my new antibodies started fighting the infection. Sat i told Dennis - I think you should leave off this new antibiotic prescription at the pharmacy on your way to work, in case it gets worse. 20 minutes later I was calling him (he had gone to take a nap in the other room) "Dennis - get the pills now!!" all my pain meds were already at max. So reading about your excursion to the woods last night was really the best part of my day - really cheered me up. I wish I could do the same for you.
And about the stamps - you can order them online. Tell me what kinds of images you're looking for (dare I ask?) & I can send you some great websites to check out. I told Dennis earlier today that I wanted to go to the craft store & buy some stamps - I have a gift certificate from my sister. But today was not my day to do that either. So I'm just going to have to get some online.
Hope you are better tomorrow.
Sharon
Well, boo. You and MD were both having a bad head day. Boo for that. Me, I had a nice day, though it has worn me out. OK, I'll tell you about it on my blog. I hope you find it cheery.
I'm thinking of you, too. Take care of your tongue (keep it, uhm, clean?).
Keep something around to bite on when those happen. A washcloth, maybe.
The pictures looked wonderful. Maybe you can take more in the fall? Any way to turn them into postcards?
Oh dear! Looks like the 'Fuck Up Fairy' paid a visit and decided to stay, eh?
I got my card this morning, thank you it was lovely :).
After your comments about records and wotnot I went to have a look at the latest info to see what rights I have to look at mine (should I ever wish to) and was shocked! How dare they decide weather it's in my best interest to look at my own bloody records or not!
I think I feel a petition coming on...
Thinking of you. Postcard will get in the mail today.
Rest, relax and heal. We'll be here.
Please get the rest you need. Much as I'm looking forward to getting a postcard from you, I don't want you to kill yourself writing it! *sends positive thoughts as well*
Belated thanks for sharing the hike pictures - just looking at them felt good, so I can only imagine what it would be like being in that place.
Sorry you had a hard day. I hope everything eases off, at least a bit. I look forward to reading again when you have the time, energy, and inclination to write; in the meantime, I'll send good thoughts your way.
Hope the crapness eases. Sounds horrible horrible.
Just so you know the sea, the boats, the binoculars, standing at the rail and your words made my life brighter today.
Thank you for being you.
Hope the seizures stop and you feel better quickly. The hike looks like lots of fun--that's a very beautiful place.
That's not so good. Seizures are rubbish - hoping you get clarity back very soon. Noticing that you have managed to get all your replies up to date for your last 2 posts though! That's also somewhat awesome I'm thinking.....
Hmm, did someone have a little TOO much fun in the woods at the weekend??
Do look after yourself...
I'm so sorry Elizabeth. It sounds like this was more than just a "bad day" but a "this day totally sucks monkey butt" kinda day.
Rest, relax, take care of yourself the best you can, and we will be waiting for you when you feel up to posting again.
Thinking of you. Sorry you had a bad day.
Hoping for better days....
Rest as much as you need. We'll wait.
*hugs*
Postcard came today, yay! Its lovely, thank you so much, lovely geishas. Collette and I and Miss Hayley appreciate it so much
Take care
:( Sorry, Beth! I hope you feel better soon and have no more scary seizures and no-communication for a while episodes. We need your voice!
Take care of yourself, do what you need, we'll be here when you get back.
It was a scary seizure. I was telling her doctor today that they seem to be happening more and more often and are more complex. When they first started happening it was just the breathing problem and the facial dropsy - now it's half a dozen things going wrong.
And how about a CT scan. He's saying no to that one as we've got an MRI in a few weeks and that will give more information. Grrr.
So sorry to hear about your problems. I'll be thinking of you and hoping things get better. Take care of yourself and take it easy!
Joan K
So sorry you're in such awful pain, my dear. Thanks for posting... I bet it was hard. I hope you get a good night's rest and find some more relief and function tomorrow.
I've sucked at getting that film into the mail for you, but it will get in this week, for sure. I've popped a postcard in the mail that might be as subtle as the one you sent me! Look out!!!
Thank you very much for you comments and encouragement. I typed part of the post one handed, part with one finger and then Linda just had to end it becuase I was kinda of errrr....messed up. So, I am sorry I was unable to give you the full story.
I was sort of obsessed with keeping my commitment to my friends, the people who come here, which is why I used the time I was awake later to use my eye to do the comments and then went back to bed as soon as they were done (so, yeah, I might spend to much time here.).
Thank you for letting me know those who got postcards, the rest are coming, honest! Even on the floor, with only one arm working (it was my writing hand luckily) Cheryl held the postcard steady while I used my eye to get the writing down (so if you get a card with wonky writing - er sorry!).
Rachelcreative: I am very glad that arrived. Very glad.
Donimo: I am glad yours arrived too - wasn't it subtle enough? Good to show the neighbors?
Sharon: I have to see the stamps as I need a very precise size and clarity, as they are for "craft" as much for "style". I am sorry that you had a sucky day too - and I hate the feeling of being maxed out on pain killers and going, "Get something, do something!" Hate it! Helpless to pain is hell on earth.
Raccoon: I would be happy to return in the fall, if that is possible. Will see how it goes. I like the arbutus tree and the cove, those would make nice post cards.
The tongue is well, better, I think, still having problems with it.
Gaina: glad you got your card today. Sorry about the not so great patient rights in the UK - yes start a petition. I had a nice GP who let me see my own file.
Devi: and I am looking forward to sending a card if I haven't already, I will check the list. I wasn't able to do any cards today (hand control) but did do some more post card shopping!
Wendryn: write on, write anyways, write late, write later, keep writing. I hope it worth reading.
Judith: see above, my readers matter, a lot.
Victor: I am glad you all liked it, and I addressed it as requested.
Veralidaine: if I had my wish, I would have my brain, my whimsy never go on strike, I am tired of things going on inside me out of my control.
Joan K: thanks for the concerns, I am sure things will improve....before they get worse (haha!) sorry, couldn't help myself.
Sorry, I am getting names mixed up so I will stop now, thanks everyone for your concern, thanks for your envy sly civilian, I will try to be fully operational, er, sometime soon.
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