I will try to explain first person what happened, and what the world looks like now.
Cheryl had come over and I had been on oxygen for much of the day becuase (blank part), but I convinced everyone to go play badminton and we did in some way (blank part) and then took a nap. After this I remember that I ‘had decided’ without telling anyone else that Cheryl was going to see the "real" version of Porco Rosso (in Japanese with correct subtitles), and Linda ordered in Pizza. Linda says that we talked about Porco Rosso afterward and other things. And then at 1:00, around 1:00, I don’t know. Linda said that I had fainted earlier that day but that is something I don’t remember, and I am finding it hard to narrate something which is pieced together from what people have said, from what can be inferred and what can be remembered.
Right now it feels like someone used my head for a fireworks arena and didn’t bother cleaning up afterward. Linda will ask me a question or I will ask myself a question and it will hurt. Typing is also difficult for me, but I must assume the touch typing and the years of typing I did (see, I remember THAT class – oh what a dull teacher!), will come back as a reactive response. That is why I thought it best to write now, before I have to stare into space as I did after waking up earlier after a while.
When I ‘woke up’ from passing out last night: it seemed as if I was in a strange place surrounded by people who were vaguely familiar. I could not talk, nor could I suck a straw in order to drink, mostly because part of my face had gone south. After I while I could talk a bit, and they could understand me. So we talked, and I remembered Linda and this other person, Erryol, my ex-lover (best guess). I also remembered that I needed to go jogging, that I was a runner. They wanted to know where I went jogging so I told them: around the Rose Bowl and the Waterfront. What kind of runner? I was a marathoner of course. Though clear to me, my speech was slurred, and they asked what my last trip was and I told them my last trip, Venice, Italy. All of these things are from several years ago but if you asked me to put them in the correct order I would have a problem. It is much easier when someone is asking me a question, because then I will see something, and I can start quoting everything the people around me said and what I said during that time. Which isn’t really an answer so much as them triggering a memory I suppose.
We tried many times to have me drink by straw but the sucking part wouldn’t work. I was on oxygen the whole time. And I was in a chair and they would come and go and the whole time there was a pain behind my eye, the same eye that wasn’t working as well as it could, as sometimes people got fuzzy and sometimes they only had one eye. But Erryol, kept shining a light in my eye and saying something. And then when I kept trying to tell them I wanted to go to sleep, which came out as book quotes. They did not put me to sleep, instead they decided to call someone, which I think was the ambulance. So I became much more imploring in my desire to go to the "blessed isle" and the "golden shore".
I tried one last time to drink but while I was able to suck some I could not swallow and it just ran out. Then there were two people, a man and a woman who had no name tags on and though I would talk, they would not talk back (Linda says that the woman was "short" and decided as she could not understand me, that she would not talk to me, which was sad because SHE was the one to ride in the back with me and I tried to ask her things all the time, like her NAME, but she used the time to fill out paperwork). They kept doing things and at one point put a needle in me to do a blood sugar count and it must tell you my reaction level that I did not respond even verbally or move at all until after they had the bandage on. They seemed to want to move me somewhere and did, strap me to a chair and then to a gurney downstairs. The woman said, "Blah, blah, blah Gord, make sure, blah, blah." So I kept saying "Gord!" every time he popped into view.
At the hospital, Gord and I spoke in Spanish, and I tried to fill in the gaps in french, because at least he seemed to understand me. I kept trying to remember the phrase from the Missions for Jesus’ "Burning Heart" which I must have remembered, "ardiente?" because he asked if my heart hurt. "Si! Mucho" Then a woman came up and said, "Elizabeth?"
At which I responded, "Do I know you?"
And she said she didn’t, that she was a nurse or someone else. Anyway, she went away quickly and people kept doing that, using my first name. All I had was what I could observe so if they used my first name I would ask them, "Do I know you?" Which apparently was the WRONG thing to ask. I noticed from the squeak in his shoes that Gord had very mild scoliosis and asked if he knew. He said he didn’t. And that was all I saw of him. Then Kyle, who had a rash on his neck because he shaves poorly, came and said my name but he didn’t know me either, neither did the girl in wine colored clothes who took of ALL my clothes?
Only Linda could come in, and she was explaining to the doctor what happened I think, but he asked if I was usually like this and she said no, they used some terms that meant "not so smart" and "addled" and Linda said I used to be very smart and then I got the condition and now I am less so but not like this. And this doctor wacked me with HIS hammer, and when my knees did not move he wacked them harder and harder until they did. But no matter how much I watched him wack my ankles he couldn’t get them to move. And my arm, which was close to him, I could not squeeze, but he could make it jump with his hammer. And it was explained later that these are two different parts of nerves, one is in the brain and one in the arm and compared to the woman neurologist, this one carried a mighty hammer, and like to use it.
At some point I went away again and then someone was pushing me or slapping me and telling me to open my eyes. And I did, to see Kyle filling up a syringe from a bottle and I could not speak so I was making a noise and trying to move what bits could move away from Kyle. And quite honestly, if they wanted to put some stuff in me with a needle, could they not have done that BEFORE making me wake up again? So my speech was gone and my arm by the doctor was trembling/spasming and he ordered something under my tongue instead of in an IV to reduce my agitation and for the "seizure." And he left then saying it was ‘bizarre, very bizarre" which I found out later was and okay thing to be, as it meant, "interesting to this Doctor." He had seen me briefly from when I came in some weeks ago about the heart with Dr. G. And now he, the neurologist was seeing me.
I waited and could not sleep but wanted to, so time passed and occasionally my oxygen meter beeped because of my reynaud’s and them not finding a pulse. I told Erryol, whose name in Cheryl that they couldn’t find a pulse in the hospital and she was happy as when they called my fingers were blue/purple and when the ambulance person said he got 100% she thought he or his machine was broken.
Eventually the doctor came back on rounds and kept calling me Nellie, which got me confused because I was pretty sure I was Elizabeth. I could speak understandably at this time. As he was gone a LONG time because room 212 was in decontamination due to some unknown bugs and there was another emergency on the floor and number 22 had died (I was across from the nurses station). He wanted to know if I knew who Nellie was and I told him she sterilized women in Alberta and was on the $50 and he seemed happy and then asked all the nurses if they knew and they didn’t and they started googling on the computer, so I think this doctor was very eccentric and required people on the floor know things and seemed far scarier to them than to me.
Anyway, he said that he saw something which he thought was a (something word) seizure. And he said he would write my doctor and my neurologist about it and that I was, as a patient, very bizarre. And I said, is that your word for "psychosomatic" and he said no, though he wasn’t supposed to use that word, he did all the time and that wasn’t me. And that he saw part of ‘something’ but he can’t say for sure what it was since I am so ‘bizarre!’ He said TIA’s do not occur in the same part of the brain twice. I asked, "And when will my memories return?" He did not know so I could go as there was nothing more he could do for me. And then he started humming and sort of danced out as the nurses were still googling Nellie McClung. So I got dressed and came home. It is my home. Though do not ask me to find anything for you.
Cheryl was worried because when I went to the hospital, the closest I could remember was a couple years ago. And now I remember many things, only remembering many things is actually not the same thing as having a memory. A MEMORY is a continious thing which helps people live each day because they know what happened before and what people are likely to do or say, and what is important and not. But a bunch of memories: of Venice, or running, or California, or even the hospital; they do not tell me who comes tomorrow and what I should do. They cannot help me make things out of new situations. So I cannot find things and I do not know things and I do not like to go outside or see people, because they will expect me to know and remember things and I don’t. Or not what they want me to.
Things are hard. I get headaches, but an aching head, not the pain behind my eye which went away after the treatment. These aching heads are from all the things I am supposed to remember. Which for normal people is thousands of things from passwords to people’s names to events and days. After Cheryl was gone, I read my emails and found that I was supposed to send something with her to be posted. That was frustrating. I should have remembered that. Except it was like there was nothing to remember. And I know that there are people out there who probably expect me to do things, or remember things, and will be calling or coming over or emailing because I was a person who was a person to get things stirred up, only now there is just me. And I don’t remember what this other me did. But Cheryl, not Erryol, nor my lover, and Linda say that more memory is coming back all the time. Yet, this morning, all I could remember was that I run and needed to go for a jog and yet I use a wheelchair, but was not sure why, and I remembered both.
I have found that I can only eat on the left side of my mouth and my hands go numb, particularly the left, which makes eating at all a chore.
I am rather scared of home care coming, as there is a schedule beside my desk here and these people know now far more about me than I know, or even of what they might know about me. And they will come and I am supposed to know what to do, to "Self direct" only right now, I am not very self directing at all, because I do not remember what is important to me, besides Linda.
I remember you, or to say the truth, many or some of you who read and comment but I will read my own blog and then I will know you again. I also can see, as I read that I am not the same writer I was a few days ago, or yesterday. I write like someone in 7th grade, and the person who wrote before was eloquent. I am not. But Linda says that will come back as well. Thank you for your well wishes and I will do things to try and hurry up so that who I am and who I was are not so far different.
I do not like feeling like a stranger in my own life. I do not like not remembering all the things from birthdays to things we might buy for ourselves on sale (I just remembered something Cheryl said about ebay and plates when I wrote that, it was like a light went on). Remembering these things are seen as trivial but take them all away and everything is merely what it is; a person without a name tag may know you, but you don’t know their name, and how they know you. I will try to go outside tomorrow, I think, I just hope that not too many remember me, or that those who do I remember (which at this point seems unlikely, as I cannot remember this last week).
Linda says that though my writing is not the same, that I am still there. I do not know. Please be a little patient, if you could and not all leave. Though I understand if you do. It is just, hard. And if the only people who know me online go away, then I won’t know anyone. Or rather no one will be there to know when the "I" from before and "I" that I am meet.
12 hours ago



58 comments:
Well, you may not know me but I'm here anyway in bloggity spirit, and am thinking of you.
- Liz
http://liz-henry.blogspot.com
oh and me too.
http://badgerbag.typepad.com
Elizabeth, I've only commented once before, but I wanted to tell you that I'm still reading (and will continue). And you seem to be still you. More will come back, give it a bit more time. Hang in there.
Elizabeth, you are still there. And I will still be here. Sentences & words do not make eloquence. The heart & soul speak eloquently even if words, thoughts or memories stumble.
Sharon
Hi Beth: Neil in Saskatchewan here.
Yeah, the you I've come to know in the last five months may have retreated inside for a while, but you are still blogging, so I KNOW you're in there!
I'm not leaving, dear Beth; I'm here to laugh and cry with you, to treasure every word you can type, and to wish you all the strength you need to stay with us.
Hugs to both you and Linda!
Hi, Elizabeth. We were worried when you didn't post for a couple of days. The Girl (who is commenting now) was particularly worried. She's been reading your blog aloud to me recently. We're thinking of you. Keep writing.
Hi Elizabeth,
When you did not blog yesterday, I figured something "interesting" had gone on. You're still you, just having a day when the words won't come. I am sure they will. And even if not, screw it. Language is only as good as the person using it. And you are the best.
Always reading,
Sharon (The Girl)
Liz: You have purple hair, I remember wanting purple hair like yours. I remember you, and your nerve conduction test, which has made me less like nerve conduction tests.
Olivia: Thank you for still reading. I am the "me of the declarative statement" - I write like Swift on a bad day. Thanks.
SharonMV: Linda likes this comment a lot. Thank you for your comment. I feel a lot like I live in the shadow of an older sister who happens to be me.
Neil: I remember Neil of the slow biking, who hurt his thumb and looks at girls, though maybe not at the same time. I hope you are okay. Linda is better now because she understands that I cannot answer some questions and she is going to stay home some this week until we know what I am exactly (and then ship me off to the seniors home where it is prune juice at morn and apple crumble and sing along at night - and I sing poorly).
Elizabeth, you actually seem the same in writing. OK, vocabulary is different, and you are obviously very frustrated, very anxious about your present state. But Linda is right, you are still there.
Seizures change us. Mental illness crises change us. And regular experience changes us.
It's OK to change and to be changed.
And I will keep reading. That won't change.
Ugh, you poor thing. How miserable! As a person who has enjoyed both brain injury and, quite recently, brain tumor surgery in her life, I can relate to a little of this. I can also tell you that, yes, I and probably most of your readers can certainly be patient, but more importantly, you must also try to be patient with yourself. I know that when I am frightened, humiliated, or otherwise stressed, my memory and language issues become acute -- which frustrates, frightens, and embarrasses me, which then makes them even more acute, and so on -- whereas if I can only stay calm generally and patient with myself, they diminish greatly.
You are doing very, very well so soon after such a nasty event. Thank you so much for keeping us in the loop, and for describing your surreal experience. I hope as you read your own blog to help regain yourself you get at least as much pleasure reading of your trip to Japan as the rest of us did while it was happening. Best-case scenario, of course, would be for you to remember it all firsthand, and I hope that happens soon, too.
Since you can't remember who you are, I will tell you how I see you from your writing: You are lovely and brave and funny as hell, with a dirty mind but a clean sense of justice and fairness. Oh, and I'm pretty sure the little black squirrels in the park miss you, your wings and your wheelchair -- though probably mostly the treats you bring them, truth be told -- desperately.
Hang in there, sweetie.
xoxo
Hey Elizabeth. I'm wishing you strength and healing and more complete memories. Also caregivers that are useful and kind, because that can, indeed, be scary when you need them and are out of it yourself.
<3
Dear Beth,
This is kathz, quaker fencer, and we've met only on-line.
You still write like Beth. Your style is simpler but I think you have slipped into a style that fits the experiences you have had. And you have expressed yourself with eloquence.
I hope the memories return - especially the happy memories.
You are still there and Linda is still there and I'm still following your blog. Lots of love
kathz
Like the others, I too was worried when you went away - I came to Screw Bronze for my daily dose of Elizabeth and you weren't here. It scared me a bit because I know you to be someone who blogs FROM JAPAN ... so it's nice to have you back. You are always you and I gatta say ... that last line about the I before and the I now meeting ... pretty freaking eloquent.
You don't know me, but I am a longtime reader and admirer of your writing. You are most certainly still 'there' in that post - yes, the format is a little different, but the spirit, the verve, it all still comes through. You won't lose this reader and my thoughts are with you. K.M.
Elizabeth, again, I hope this passes quickly for you, I know this is frustrating for you, but the after effects of the seizure should wear away, eventually.
Good luck, and my thoughts are with you.
I'm not going anywhere!
Also, it appears that you are still the same Elizabeth; it's just that more has happened to you. Thank you for continuing to write.
*Hugs*
Echoing what others are saying - it's still you, even though the language won't come the way you want it to. The brain is both very delicate and very resilient. Things have gotten discombobulated in there, but they won't stay that way forever.
I'm still reading. You couldn't make me stop if you tried!
I'm glad you are feeling a little better at least -- it all seems so scary!! Give yourself some time. A good friend of mine had some memory loss after an accident and it took her a while to get back to feeling "normal" again. Hopefully you're in good hands with the doctors.
Elizabeth, no matter which you you are at any given moment, and whether or not you remember who I am, I will still be here, flying along with you.
Stephanie, in Victoria
I'm Heather and like the others, I'm not going anywhere.
I began reading your blog after I read your novel. So I've blog-known you as a novelist, as an eppeist, a goth-corsetted manga fiend, an activist documenting what it's like to have autonomic failure and still be an athlete, a partner fully aware of Linda's love, a world traveller discovering that in Japan "aieeeee" is rarely spoken even when needed, and a thinker.
All these things are part of what I think about when I think about "Elizabeth".
So, yes, you might be changing again. And there is still much unknown. But you are still Elizabeth.
hey you.....
lots of love on this end. Hang in there. Still reading.
WCD
I can still see the 'old you' in your writing. The technical style may have changed, but I still see the same person behind that.
Thinking of you and wishing you both the very best
Hey Elizabeth. Victor here. Hey, girl, I basically just got here so you can't get rid of me so easily no matter how hard you try. I'm the dude who likes the knives and you may have an email from me, in which I shared a story with you, a story that you and your writing and your powerful personality allowed me to write after two years of keeping it locked up inside me. You still have the words, you've always had the words; perhaps they are different now or perhaps they are just dormant waiting for you to wake them up. You will do that, I know you will, it just takes time.
Please take care of yourself. All the best to you and Linda
Sis
You seem like pretty much the same Beth to me. It does seem like someone rearranged your internal filing system so it's harder to access but I enjoy conversing in non-sequiters.
I will be reading, commenting and keeping in touch while I am in San Francisco this next week.
Take care and be kind to yourself. Don't beat yourself up for not remembering something.
(((HUGS)))
You are still there in your writing - it's a bit different, but I can still hear Elizabeth in this post and in your comment.
I'm not going anywhere. And you couldn't get rid of me if you tried.
I don't comment much, either, but I'm still reading and will continue to read. Your written voice sounds much the same, although a bit frustrated - you are still you.
*HUGS* for both of you.
still here. still listening carefully.
hang in there...and fly when you're ready.
Don't worry, Elizabeth, I am not leaving you. I am glad that you are still there writing and I will be here reading as long as you want me to.
My Beth (my daughter - she loves anime) had her hair colored purple over the weekend. I will take her picture tonight and post it so you can see how beautiful it looks.
Hi Elizabeth. Rachel here - blogging from the UK in drawings and photos and self portraits with CFS/ME.
Still reading. Not leaving.
Still struggling to find the right things to say in comments :o)
I'm not going anywhere, honey. A LOT of people will hang in there with you and your (our) Linda. We love you both, and friends do not abandon friends when there is a need. If you need help jogging your memory about me, just ask. But please, Beth, don't tax yourself too hard trying to remember. The memories will probably return more quickly if you don't chase them about.
The fact that you're blogging tells all of us our Beth is there, speaking within the other Beth you feel you are.
Well, I'm not sure if you remember me (I used to post as Lindsay before I got my own blog), but I will definitely keep reading. Your writing still has the same heart it always has. And, you are also a really cool person, so of course I'll stick around.
I wish you well.
*hugs*
Beth, hopefully you remember me- you sent me a postcard with a rodent on it, and I am your honorary crazy cousin from Colorado. I know you are still there. Things your brain and body do without asking you don't damage who you truly ARE- whether it is a soul or energies or whatever you believe, a human being is more than the sum of her parts, even when the parts don't perform as expected or downright stage a mutiny as yours have.
Elizabeth, it's good to see you posting again! You still seem like you to me, even if the writing isn't exactly the same, the wonderful person that you are comes through anyway. That person is the whole reason I read, and I won't be going anywhere either. I hope what was lost comes back quickly.
Hugs
N1nj4G1rl
Hi wonderful person!
You still sound like yourself, but it sounds like you've retreated inside yourself a little.
You mentioned telling someone in the hospital that he has mild scoliosis; *that* was the Beth we know and love, speaking from inside the new you.
So we're waiting patiencly and sending love and best wishes for both you and Linda, and hoping that things improve for you.
Now, I'm about to send you an email from my work address, which you will not remember because it's the first time. It's my reply to someone who's looking for volunteers for a 3/5/10km run on May 25 here in darkest Saskatchewan. You've got me motivated to help, you wicked, wonderful.. enabler!
Love and hugs to both of you.
Neil
Seconding what the other people have said, that you still write like Elizabeth. I'd recognise that writing style anywhere.
Don't really know what else to say, except all appropriate good wishes to you.
(Knowing you like dark humour, it does strike me that, as someone who has been writing 1000+ words per day about their life for the last year or so, you're probably better placed than most to deal with a loss of memory...)
I hope it comes back. And you are definitely still you.
Count me down as someone else who is still reading and isn't going anywhere (though I mostly lurk). I hope things get better for you.
You don't know me, and I've never posted a comment on your blog, but I've been reading it for a long time. Hanging on every word, actually. I stay up late just to catch the newest post. I'm still listening.
I wish you a lighted path out of this fog. Sometimes I feel like what I've learned from you has given me a little lantern that clears away the fog in my own life. I'm sure there are others who feel the same. Thank you.
Maybe a bit like the hopping lantern in "Spirited Away" :)
I'm here too. Hang in there, or don't, but don't stop writing!
Hi Elizabeth!
You are still there, it's just going to take a little to get back to where you think you should be. Don't give up.
We aren't giving up on you.
Raccoon/Michael
I missed you yesterday and was concerned that something major had happened. I was hoping you'd been out feeding so many squirrels and playing so much badminton that you just didn't have the energy to post. I was thinking of you as black squirrels were discussed at dinner, remembering your ninja squirrels!
I'm still reading and am not leaving and you are still you. I hear you despite the slight change in vocab and style. You are so strong, you leave such an impression that your voice is loud even if you cannot speak.
Linz from the UK
linzworld.wordpress.com
Of course all of us are still reading- I've been reading your blog for about 6 months, and won't stop. Your writing comes through as essentially you - maybe some shorter sentences, but still unmistakable, with a style and a truth that few of us could achieve. If that is 7th grade writing, I still haven't reached that plateau.
Your brain will manage to integrate the pieces soon - that's the benefit of having used your brain so much - there are a lot of extra parts and connections that are plastic enough to start taking over . All the best to you and Linda.
Hang in there, Elizabeth! Memory loss is scary and frustrating and a million other emotions that are hard to put into words, but it's really encouraging that things are coming back. You're also a step ahead of the game by having someone as supportive as Linda around you!
I've only commented a few times before now, but I'm a stroke survivor with fairly extensive damage to my long-term memory. I have, undeniably, changed since the event, but I'm still the same person. Just like you still sound like Elizabeth, only maybe a little bit changed. This is the scariest part; it gets easier. Bon courage! It looks like we're all hanging in there with you.
Heck no, we're not going to leave, you're stuck with your loyal readers no matter what.
I was worried something had happened as well but was hoping you were having a fun weekend with Linda and Cheryl. I hope your memory returns to you. Regardless, I enjoy your online company.
Hello:) I just found your blog and have been reading past entries:) I can't remember how I found it, but I'm glad I did.
Hope you feel better! Geez that sounded VERY lame.
After reading past entires, you still seem to be the same you:) Which I happen to think is pretty awesome!
Elizabeth,
You are still the same person, just with a bit less access to your old memories. I bet some of them aren't so awful to forget!
I'm in several classes tha deal with brain damage from TIAs and such and from what I've learned so far, the next month will be nothing but healing for you. I am confident that your normal sassy self will return.
I must either be a very interesting, slighlty evil person or just very fortunate to have so many people write a comment; thank you, you don't have to again if you want to lurk; I love the lurkers just as much as the rest.
The girl and lilwatchergirl, thanks.
Tom P: Well, all right! Go purple!
Yanub: We shall overcome, we shall OVERCOME....some day (ay....ay!), oh, oh, deep in my heart, I do believe; we shall shall overcome some day. (That I can remember!)
Sara: I hope that patience, and self tolerance were part of who I was before because I am not feeling them now. I get up, I get tired from things stuffed in my head and sleep again. It is like school on meth.
Kay Olson: I think my careworker was as confused as I. Oh well. To me your eye seems entirely blue...I hope that is intentional as things turn blue for me at times.
Kathz: I know you, you and your daughter who was/is goth and your riding to fence and getting your points, and not giving up on the sport or yourself.
Dave: I write becuase I used to write and I thought, what am I supposed to write about, but I am sure things will happen. So maybe I will be shorter, I am sure the blog yesterday is a good example of my new "short post" policy. Haha.
K.M.: I will write better than I Did before, I will write better than before, I will write better than before. That wasn't a good example of writing, but not bad on determination.
Kita: Thank you, thanks
Abi: Yes, things happen now, that seem very strange, but they both Linda not at all, which tells me that Linda IS strange.
I agree, it is hard trying to piece together time from other people's accounts when you simply don't recall it ever happening.
It's different and scary and from my experience, no one really 'gets it' unless they've had it happen to them. There is "I don't know where I put my glasses- not rememebring" and then there is "I have no f***** clue what happened in that period of time- not remembering" It's very different. Very different.
After it happens to me I always am wondering, "Ok, what are they not telling me? Did something else go on that they are not telling me? Why can't I remember? Why don't I remember any of this that they said happened?"
As everyone else said, to me, you sound like the same Elizabeth I've been reading for months. I hope you are able to piece back your memory to a level you are comfortable with.
Best of luck.
Hi Beth-
Thanks for pointing out that I have sex with frogs...now my secret is out!
I'm glad you're up and around! I also understand the frustration with the memory loss; I've been there after the bad migraines which for me are very similar to seizures. Getting places and not knowing how I got there, missing chunks of time and being exhausted! Don't rush the healing and it will return but it may be in the filing system a bit differently.
Lots of love from across the water!
You're here, you're queer and we're not going anywhere.
You have a flock, a gaggle, a swarm of readers who really care about you. I think those of us who are active in the disability community know that the body sometimes bends our words and thoughts but that doesn't mean that our true selves can't be communicated. You-the essential you-shines in your words.
I struggle with my own deep fog and I understand your impatience and worry. From what others here have said it seems as though you and your great big brain will likely slowly get back on track. Slowly, slowly move forward and we'll all be here right along with you.
Elizabeth said: Kay Olson: I think my careworker was as confused as I. Oh well. To me your eye seems entirely blue...I hope that is intentional as things turn blue for me at times.
You are not seeing things on my account -- my profile photo is all in blue. I'd love to be able to come out as a smurf, but it's just some photoshopping.
Also, I think you are "very interesting" AND "slightly evil" (in a way that makes me laugh out loud when you talk of your adventures) AND hopefully also "fortunate," with some luck and less confusion coming your way.
Take care.
And you also hosted a mighty fine edition of the Disability Blog Carnival last year, so.... you're permanent in my blog reader. Post pictures of cats and knock-knock jokes, if you want, I'm here either way.
I wonder if doctors will someday read our blogs to discern neuro changes before and after such events, like one more thing on the diagnostic check list..."hold your hands out, push, stick out your tongue, write a blog entry, stand on one leg, what's today's date," etc.
You're VERY interesting, Beth dear. I'm with you all the way, and if this is a new chapter in your life, I'm still here.
50 comments: that should say something positive about how we all feel about you. All together now:
BETH ROCKS!
So does Linda!!
Relax, sleep well, and accept all the positive energy coming your way.
I very much want to thank everyone for the comments and introducing yourself which helps, and I will continue to post comments back it just may take a day longer as um, I didn't realize how lucky I was.
Perpetual Beginner: I am already getting better every day Linda says, and though I need to reread my posts a few times to take out the odd words and finish up the unfinished words it seems like I am at 80% capacity - I don't have all the words I want and I am not sure what is funny and what isn't and I make odd mistakes but linda helps with that in the writing. In life, more like 50%. I don't know how to do things or where things or when or so much. But it comes.
Wiccychicky: I have confidence that my avoidance of drugs and alcohol mean I can destroy large sections of my brain and still eventually seem normal. That's my big hope. I wish I was in the hands of doctors but between the ones at the ER (who are like, "Can't fix you, come back when blood comes out your ears") and my GP, who is trying to get things done within like 4 months. I feel a bit without safety net.
Stephanie: Linda knows you and said I gave you a mug. But I think I remember your comments and I appreciate you being here for me.
Heather: thats cool. I wrote a novel? Um, well, that is a lot of things, I did notice I had a LOT of skulls around and thought they were pretty nice (brain injury has an advantage, it is like shopping all over again, the rush of nice things that are just what you want....but actually bought some time ago). So I am glad that you will be here to see the new me. Which according to Cheryl, might be changing again any time soon. Actually according to my doctors too. I just thought they meant literally, like...less body parts.
WCD: Thanks, I will definately try to catch up on all the blogs of everyone
Dark Angel: Um, not sure how to respond when a Dark Angel wishes me well - aren't you supposed to be reaping me. Oh well, I guess Morte' has internet too! Seriously thanks! I appreciate it.
Victor: "I'm the dude that likes knives" - just don't mention that at say a) pick up lines, b) Job applications and c) psych evaluations. Seriously, thank you for letting me know, I see a rack of knives when I think of your name, with wooden handles, does that make sense to you?
I am glad you are sticking around becuase I will keep writing and I hope to get up to speed soon.
Cheryl and Lene: thank you, it is good to know that you will both hang on. Thanks
Sly Civilian: thanks for letting me know - I watched that "it's my life' video today and liked it a lot! A pig's gotta fly.
Wendyrn: Thank you for the hugs and well, I don't feel the same though I don't know what SAME is - but not this confused I think - but onward!
Rachelcreative: 365! I remember big project, I remember t-shirt called bad hair day. Thank you. I have SO much to catch up on.
Dawn: I know that I should do things like tell everyone I am off for a week, except I don't know who everyone is and am scared to find out (it might be a LONG list), and I don't like waiting for things to get better when I can force things along (does that sound like me?). I hope I am not the type who gets a bit of brain issue and turns out a different person.
Lindsey: thank you for letting me know and dropping by to comment, I really appreciate it. I think you are pretty cool too, since you are passionate and put yourself out there on issues which are not always popular. As I have read on my own blog, sometimes people get a bit miffed (at running races?)
Veralidiane: Thank you, I sent you a picture of the cat bus I think. But that is all because it is tired brain time. Sorry. Thank you so much for comming and commenting.
N1n4ag1rl: thanks for commenting and letting me know that I am not so odd or odder that you will flee like a 50's film. "Antgirl Attacks!" - it turns out that massive pain in the head repeately doesn't give one superpowers. Just a thought. Thanks again.
I have to stop for today as I am getting confused and having word problems. Sorry.
Alas, my friend, I would not say that patience and self tolerance were a significant part of your personality, not based on how you write about yourself, and that is precisely why I felt so free as to recommend them. I thought it might be a new strategy you'd enjoy trying, maybe just this once. ;)
And make no mistake, I'm not all that good at it either, and it's especially hard to stay calm when you have absolutely no control over the things that are happening to you. On the other hand, I also find that I can take a great deal of comfort from realizing when things are just not my fault. When things happen to me, through no fault of my own whatsoever, that's something like 60% of my stress over any given situation gone, just gone. I also take comfort when I can realize that I'm doing everything I can do, that there is nothing else I have to do. That's probably another 5%-10% of my stress.
I don't know how these percentages break down for you, but if it helps you be nice to yourself, realize that (a) for quite some time, you have been working very, very hard for yourself as advocate and also keeper of your own body, (b) none of what is happening to you right now is your fault or anything you did anything to deserve, and (c) you are doing everything you can do right now about the situation in which you find yourself. Also -- and I've said this to you before -- please consider the possibility that it is impossible for you to fail right now, no matter what happens.
Aren't I a pedantic twit? hahahaha Sorry; of course, I only mean to be helpful. You may feel free, as always, to tell me to take my advice and observations and shove them up my...oh, whatever you think is appropriate. Meanwhile, I'm just rooting for you, and believing in you.
Please don't worry about responding to all of our comments, especially when you're tiring--that's a heavy task.
I had to smile about the shopping-all-over again comment. Your sense of humor is certainly always present!
Don't worry about mistakes with words--the people reading here have read often enough that we understand what you mean.
I don't like waiting for things to get better when I can force things along (does that sound like me?)
Absolutely.
Hi Elizabeth-You may not have felt very eloquent writing this, but it is powerfully affecting writing.
It's awful that we have to experience something so awful to gain the ability to write so purely in the immediacy of our experience.
Your experience is not lost if I can take hold of some tiny glimmer of it.
I am catching up. Hugs. Sending you prayers and hugs.
Just reading along and catching up.
You're one of the most eloquent people I know of, always.
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