Tuesday, May 13, 2008

Beth and badminton: pain, sanity, insanity, naked joy and a video

It has been days of stone: hard. The nights are worse. After three hours of cramps so bad that I scream over and over, I get carried to bed after 3:00 am, with a previous TIA making the corner of my mouth turn down, I know I will lucky to sleep three or four hours before I have to be packed with ice from overheating. And that is not half of it, not a fraction of it. So I spend much of my day working, fighting or working to keep my long term health up, at the cost of my immediate health and sanity. Because, when you have a full heat exhaustion meltdown twice in 38 hours; and when you sleep five hours one night, then four, then just hallucinate, it is hard to know what sanity is.

I guess sanity is going forward. I get from my bed to my wheelchair because I need more painkillers. So maybe sanity is wheeling over and turning on the computer. Or maybe that’s insanity.

I went to badminton last night; I was late because a home care worker was supposed to help me dress. But she didn’t feel like it, so she didn’t, the same way she didn’t do the dishes or make my bed as I asked. I did not feel like badminton, but then, often we do what we know what will be good for us, not what we want to do.

I hate going up that hill; I hate wheeling into the Y knowing in six hours I will be in so much pain I will but unable to keep my upper body still for more than a second or two. But I do it.

Linda wasn’t there, she had to finish writing a course that was to be taught the next morning in Vancouver. She would come to watch me later. My volunteer is away for two months. So I went up alone and put my badminton racket in the rack and got out on the floor.
Because I am physically and emotionally burnt, and I knew that if I could just focus on playing, just get the endorphins going then I would be able to smile, something I hadn’t done that day. I would be able to laugh. And so, I calculatedly forced myself up the hill and into the court so that I might let myself go, and pay the price later (which was a TIA). Because these courts are where people know my name. Where people applaud when I rock my chair vertically to get an extra two inches for a slam.This is where I can be tired, where I can despair and yet cheer myself on: “Come on Beth, focus, we’ve got to get some flow here, got to get this serve!”

And when those moments come together and you smile, and laugh that is when I remember that this is what I AM fighting for. And what to the rest of the people is a hobby, is to me a reminder of so much of the life I left behind, where the frisson of play, people and purpose come together. And because so much of my body has taken choice away that I have to choose, knowing the risk, hoping that this time it won’t happen, but knowing that it probably will, all for an hour or two of wild abandon.

Badminton is where I am naked. Naked emotion, naked desire, and the one place I can be fearless because crashing to the floor or getting a birdie slam into my face (as I did last night) is nothing, absolutely nothing compared to the pain of taking a breath later.

I can’t tell if I’m crazy. But, if I can force myself, I’ll probably be there on Wednesday too. Here is a video I made, some pictures, some video Linda took of what Badminton means to me. Yes, it is the hits and points but it is the partner laughing as you pound in frustration at a missed hit or the jubilation of victory. It is how I am seen, and part of the best three hours of my week (that's how much time a week on average I genuinely feel good). I hope you enjoy it, because I did. Yes I paid, but I had joy.

16 comments:

Victor Kellar said...

I guess sanity is going forward Elizabeth, thats all there is, the going forward. I know that, for you, going forward may oft times lead you to places you'd rather not go, that it forces you down a road that strips you of certain possibilites, that speeds you towards a destiny you have not chosen .. but you still have to go. To not go forward is to remain still, is to cease moving but you know that staying still will not prohibit the momentum, it will just take away even more choices while you still move down that road. So you've decided to make the choices you can make, to perhaps select the speed of the journey in the ways that you can, and to make the unpredictable detours, even though they may be very costly. You are Elizabeth Fucking McClung, so of course you are going forward, that is the sanity you impose upon this insane reality that has been thrust upon you

yanub said...

I am consistently amazed, not just that you find the energy to push on to badminton or some other activity, but that you manage to blog nearly daily at such a high quality. I spent most of Tuesday sleeping off having gotten new shoes (an exhausting process) and here you are, blogging with pictures after what was an even worse day. I will learn your secret yet, Elizabeth Fucking McClung! And then, I'll become ruler of all I survey!* Bwahahahaha!

So is it sanity or madness that keeps you moving forward? I think that the wild desperate move is the only sane one when faced with impossible odds. At least, that's what I learned from Captain Kirk.

*I pretty much survey a mobile home and two 20 year old cars. I must learn to survey more grandiose vistas.

Elizabeth McClung said...

Victor: this was the part where you were supposed to offer to take the seat on the cursed airliner! Oh yeah, logic says forward is inevitable, I just get so tired of it, seriously, tired of living a life of rigid diet, and other patterns in order to optimize or manually manipulate systems the old noggin is supposed to to anyway. No wonder Atlas never wanted to come back after he got Herc to shoulder the earth (it wasn't Atlas though, it was nother name). Anyway, the pics were very good, I wish youtube did them justice.

Yanub: Well, I do agree that Kirk taught me all I need to know about logic, just where is spock when I need to shove him into the radiation chamber....I mean let him heroic sacrifice himself - oh heck, it would be worth it if my disease actually spoke shakespeare and was Ricardo E. - "Into the depth of hell...." Yeah, that's what we like in our villians.

The secret is that I am always writing, it is just only a few hours I have my hand (hands if a good day), headphone making the words. Plus, I don't have to buy shoes, my don't wear out (something I continue to point out to shoe stores I apply at - I applied at another one recently - "Hey, my shoes will ALWAYS look brand new!" - they were not swayed.

Heather said...

The cost you bear (TIAs) saddens me but the joy in your face is very real and I'm glad I got a glimpse of Elizabeth Laughing McClung.

Perpetual Beginner said...

Forward is the only direction we have - but choosing to move forward instead of being pushed there by inevitability is sometimes the only control we can assert.

Sanity is sometimes indeed going forward. I'm glad you still have those three hours and your nakedness in them.

saraarts said...

If it's not sanity, well, I like your kind of crazy. :)

After your video completed, I saw a link to another video for "Wheelchair Squash Domination," which shows two guys in wheelchairs playing squash with each other in Holland on what appears to be a conventional court. Watching both that and your video it occurs to me that wheelchair racket sports are really at least two, maybe three sports in one, or two sports and an art. You have this impromptu choreography happening every minute. You have the racket sport. And when it's wheelchair vs. wheelchair, you even have wheelchair racing.

I don't really have a larger point to make. I just thought that was cool.

Lene Andersen said...

Because sometimes, it's worth it. Absolutely.

Sanity is going forward, it's just that how we go forward can look like insanity to others. And I hear you - sometimes, paying attention all the time, always remembering where you're at in the schedule of rest, meds, food, etc., is so damn BORING!

Your care worker "didn't feel like it"? Did she forget she's getting paid to do it? Might her boss have an opinion about that? Well, no. I forgot who I was talking about.

Veralidaine said...

Ms. Elizabeth Fucking McClung, I just popped into the comments here to mention that, if you are still worried that the weight loss is making you look less like an athlete, you still look like a total jock to me. How the heck do you hit that thing? I would be just missing it and getting mad every time. Hand-eye coordination is not my strong suit, and it's so little!

Gaina said...

Of course you're insane! That's why I like you :).

Remember we talked about Spina Bifida Occulta a few weeks ago? Well, people with spina bifida have something called a Chiari Malformation where the brain sits lower in the skill and the base can descent into the spinal column. This can cause TIA's. Have you had an MRI scan? If so, what did that show?

Neil said...

So in order to say alive, you engage in exercise that might kill you. And we all seem to agree that this is sane. Does this say something about this motley group that feels so much like a family?

You're wonderful, Elizabeth Incredible McClung. But I have a request: when you put up videos, could you please tell us what the music is? You use such cool music, from genres I'm not really familiar with. Today's tune sounds kinda familiar, but I can't place the voice. Avril Lavigne???

Maggie said...

You rock! I'm sure you can kick anyone's ass in just about anything you put your mind to. Short tonight because in the middle of another head splitting event...
About your comment yesterday--I know your type. You want to convert me. It's not gonna happen.

Raccoon said...

I thought you were going to relax and recover, not go off and get another TIA!

Neil, "Listen to Your Heart" by Heart, I believe, although I've never heard that mix before.

Nope, by Roxette (perhaps best known by the album "Joyride"). I still had never heard that mix before.

cheryl g said...

OK that careworker has to go...

You seem perfectly sane to me Sis for whatever that's worth. Your choices are another manifestation of you resisting I think. Yes, it's a high price but it is the lesser price in the long run hopefully.

Elizabeth McClung said...

Hi folks. It's Linda here. Just wanted to let you know that Beth is under strict instructions (from me!) to not answer any comments tonight. She needs a break from her hard day and her brain is making it difficult to understand comments.

I think I might have to tie her hands to her chair because everytime I leave her at the computer to relax and watch a DVD I return a short while later and she's working on something - blog, emails, mail orders, etc. Sheesh! What does it take to get her to relax? Maybe I should try sitting on her?

Have a good night/morning everyone.

Linda

rachelcreative said...

I too wish the price wasn't so high for you.

I read yesterday "Be alive every day of your life" and thought it sounded good.

Dawn Allenbach said...

Linda -- Sit on her. Tie her down. Anything!

*hugs*