I spent the whole day with appointments I had forgotten I booked, including returning from one to get a phone call two minutes later from two Ergonomic Occupational Therapists (Whatever they are). They were coming over, and stayed until 5:20 when I went to sleep and was woken by Linda to go up to Boxing, so I could sweat and get the circulatory system going before Japan. She actually said: “You need to get up to go boxing, I know how much you WANT to go.”
I can tell you, going from a dead sleep to going up and hitting a heavy bag and then not sleeping tonight because I will be in pain is not my description of I “want to go.” But more like “NEED to go.”
The bad news was that with the previous week getting my finger jammed I didn’t sweat so it was REALLY hard to convince my body I was serious. Translate that: I boxed until my eyes rolled back and I fell over and they rolled me outside on oxygen. I kept trying to go back inside and my volunteer would say, “You’re not going inside until I can understand what you are saying.” And I would raise my arms and go, “Fuuuuhrhr” Which was as close as I could get to “Fight! Let’s go fight!” And she would say, “Yeah, not getting that.”
It snowed today. I just wanted to throw that non-sequitur in for Neil and all those still snow bound (Lene). Anyway, I finally got back in the gym and got to punch and punch; and the sweat came! Woo Hoo! Anyway, by the time I got home, I was SO high on endorphins that I talked non stop, but so fast that I was a bit daffy duck. I heard Linda telling the night care worker to watch out for when I “crash.” Me? Crash! Never, I am SO looking forward to Japan, because I HAVE my wheelchair, though it has a different balance so I keep not flipping up correctly. And if I feel like this over there I could wheel forever! I am guessing my endorphins might be a bit of a cruel mistress and leave me twitching and groaning later tonight. But no reason not to enjoy the ride for now, right?
We scotch-guarded our raincoats again, which got us high (like I needed that!). The ergonomic OT’s say they can work with me to get ahead of the curve of my degeneration. And I can get a computer mouse that is clipped to my workstation and I use my forearm to move it around (because I have better gross control than micro). They also said they can do something or adapt my motorized wheelchair so it uses gross and not micro motion so I am not so scared of it (and so our doors are not QUITE so battered by it).
The other good news is that I have gone back UP the ladder of Reynaud’s, as for a few days my “Red arm/side” and “Yellow arm/side” had gone down the ladder to the Yellow arm and the purple arm. Well, that isn’t good because the next color is Purple arm and blue arm, then blue arm and black arm, then no arm. So, while yellow shows that the right side isn’t circulating as good as the left, yellow is still much better than purple. And we don’t want to go down that chain, at least not for now. I am a little concerned as I lose strength if I ever get bed bound for a while and can’t exercise to sweating level (which badminton doesn’t), how long will it take to go down. It seems about 14-16 days right now to go to the next level. Probably very boring reading for you but actually WATCHING your OWN limb lose circulation as it heads toward gangrene and amputation can be rather riveting.
I have done nothing fun for days and am getting the “itches”, I want to DO something! I want to have some me time, put up a blanket and make a tent and have a tea party with my plushies – either that or pull up my top and flash my titties while rolling downhill. Sort of tie on which to do (I know which Linda might prefer). So might need to include some me time, which I am NOT going to get tonight nor tomorrow as I have the interview and the photographer coming.
The odd good news for today is that checks are coming in: Blue Cross payments finally arriving, refunds for things we had forgotten about. Good since the dollar is dropping like a stone against the Yen. The best news is that Linda stood firm at year end review about asking for TRANSPARANCY in regards to her Management job and development. She was stuck between me going, “You call me once you send that email?” and the fear of her boss…but she sent the email. Today her boss walked up and handed her an envelope with three lines saying that due to her assumption of new duties, congratulations and her new pay (we would say a raise except it what should have been paid a year ago). So, at last, finally, after a year of turmoil and feeling exploited Linda is relieved. Which means I am relieved (because people using my partner and treating them badly makes me a wee bit irascible). So, hooray for Linda, she made meetings with the boss of bosses and asked for explanations and while none have yet been given, the mystery envelope arrived.
So, we are feeling sort of in the midst of a calm, snow and all. Preparing for a new adventure, and maybe some sort of better, and a little less stress in the life afterward. We did the postcard addresses today and I am really looking forward to sending them out to everyone. Because I really do feel that without the support, encouragement, gifts of cheerwine, buttons, letters, and other gifts given as well as the comments, emails and calls that I would not be as sane or ready to face this big unknown: Elizabeth’s big international expedition!
5 hours ago