My GP just called me as he heard I "was throwing a tantrum." I asked if that was what Linda said. He said he paraphrased her message.
I asked if he had an issue with me as a patient, he said his issue is with "This entire fucking system!" Wow, suddenly I like this guy a lot more. He continued, "In which the treatment of the patient seems secondary." (no disagreement here)
My NERVE CONDUCTION test came back. It says that I am ABNORMAL in the peripheral nervous system. I asked, "Is this a good normal abnormal or an abnormal abnormal?"
He said this was an abnormal abnormal and that now he will package everything together and hope a Vancouver Nuerologist would see me because "This proves you are not a NUT."
I said, "You do put things rather succinctly."
He said he keeps pushing for Seattle because he had two patients who went there and got a course of treatment in weeks instead of months. He also said that he would try me on a new pain trial in a month, once he talks to the Vancouver Neurologist.
Anyway, this shows that with my heart and BP, that I have autonomic failure within my central nervous system AND within my peripheral nervous system, which excludes Pure Autonomic Failure and makes Multiple System Atrophy the number one choice (again!). But until, the doctor said, it was followed up with "scientific testing" no real conclusions could be made.
"Does this mean putting a taser to parts of my body and turning up the current WASN'T 'scientific testing?'" I asked.
He laughed and said it was but now I have to go.......wait for it.....to the Nuerologist. There is one test I REALLY hope they don't do - it is called the sphincter EMG nerve conduction test. I will PAY someone to stand in for me (or if you are INTO getting electricity sent to the nerves of your anus, you can pay me!)
I promise tomorrow to return to regular programming, I am drinking my gatorade and will get some food delivered and will take a pain pill. I never thought I would be so thankful that my peripheral nerves (like arms and legs) are "officially" fucked up so now we can leave the "hysterical/conversion" label behind forever and move on to more painful experiments to arrive where we began, that there is no treatment but now I am "officially" disabled/sick/dying.
Though apparently, in BC, more autonomic cases are appearing this and last year than should be (about 5 times higher than statistics) which indicates there may as yet be ANOTHER yet unnamed autonomic disease.
There is something so sick in being happy that after 14 months, someone 'scientifically' believes me that my leg and arm nerves are all fucked up. And that I am happy? I think the crying comes later right? I mean what am I supposed to do; "Woo hoo, take that Doc!" Pump the air with fist, "I TOLD you I was dying!" Actually each week I alternative what I am "hoping" I have been misdiagnosed with. This week I think I am hoping they will find it was Mono after all.
1 day ago