I decided to take control of my life today. When my GP called I told him that I was only going to have one medical appointment a week for the last two weeks of march because a) I am booked every day until March 12th already and b) I need to be healthy enough for an international flight. He said, “Well, that would be nice…..but….”
I think that falls into the “Oh Shit” category. I have concluded that my specialists need a subject, but must that be ME? For example, if I had NOT had the “help” regarding Dragon 9 which was supposed to help me make sure I made all my writing deadlines, I would not, for the first time in 2008, be missing a deadline tonight (I can write a draft….but I don’t turn in drafts!). Because I could have used that day to write the piece. So, I am offering good Canadian money (worth more than US….some days), for someone who will step up as Elizabeth McClung and fill in on these tests for me.
Because again, we are all in mystery autonomic function territory here and quite honestly, I would think after being wrong a solid year the doctors might let me call a few shots. Like the Dr. A. who not only I but also MY GP thinks her last diagnosis is completely contrary to these recent tests (much as her earlier diagnosis), has said to me, “Ego may be a factor in getting the assistance we need.” (no sadly, not mine being stroked but Dr. A’s). And this is while Dr. A. is refusing to give up her LAST assessment which I need to get PWD status federally. My doctor’s staff has actually contacted Dr. A’s staff who say that Dr. A won’t give the notes for my visit to her in Oct/Nov to THEM; so they can’t give it to my GP. No, it isn’t Monty Python, why do people keep asking that? This is a well ordered system of socialized medicine: I might note however that my FATHER’s hand tremors shown to the same GP as I showed MY original hand tremor’s too got two results. My father got……..an immediate order for an MRI! I got……a diagnosis of PTSD and a prescription of valium! Not saying there is gender bias, just pointing out the difference in response. Actually, if there are ANY males who have been diagnosed with “hysterical” anything, can you let me know? I just say that since my seating clinic Physiotherapist had been referred to MANY cases of females with “hysterical paralysis” but no males.
Okay, now it is midnight, and……
Sorry short post today because I spent 5 hours today reserving hotels after learning about Japanese culture. I called IACE and said I would stay on hold to answer questions while they called the reservation in. This is when (four days later) we find out that, they are not authorized to make calls to Japan, which is why the itinerary was sent to Tokyo for review, why everything is in slow-mo mode. This took until 6:00 when I called Tokyo and made a reservation and then after the nap we called Kyoto: Linda on one computer looking up web pages while I scrolled through review sites calling out possible places. If they matched on three sites we called them, asked for a room, asked how many steps to the bathroom and asked for the QUIET side (it seems EVERY hotel has a noisy side and a quiet side), so far we have 2 candidates for Beppu, three nights reserved in Kyoto, 2 in Kanazawa, two in Tokyo and one up in Kakunodate. So we have most of our rooms reserved or possibilities, particularly the busy central Kyoto or remote areas and now feel a little better. Only oxygen and a wheelchair to go! I am obsessed tonight with getting a silk Kimono from Kanazawa which uses a 18 step technique and uses purples and deep blues, far different than the Kyoto colours, and recognized as an art of its own in 1975. Linda is like “When are you going to wear it.”
I have a glazed look, “Want KIMONO! I will frame it if I have to and put it on the wall. WANT pretty Kimono!” Here is an example.
Anyway, off to sleep as no ebay done today but we are yards ahead in the “Are we REALLY going to Japan and not going to sleep on the street?” question.
More news tomorrow on all the juicy details of where we are staying and what we are planning to do (like watching the apprentice Geisha at twilight as they hurry in groups to the performing theatres and special rooms in Kyoto)
1 day ago