Have you noticed that some doctor’s are “disaster chasers?” The worse things get for you, the happier they become. I saw the doctor regarding my thyroid this morning; because the blood tests had come back. These were the tests that had already been done by another specialist, but he wanted them completely redone in a different lab. I knew with the results back the only options were a) found something and more tests, b) found something and treatment, c) found nothing and more tests and d) found nothing and ‘see ya later.’
The doctor came in. He was happy. I should have known this was a bad sign. Last time my T4 was low (whatever that means), this test my T4 was normal BUT my (something something) was abnormal (to quote him: “Most people are ‘comfortable’ at 2.0, you are at 6.0”). He thinks this means that my autoimmune system is attacking my thyroid which causing it to change readings all the time. I must have had a “freaked out” look and I said, “Autoimmune attacking?” so he told a story to show me how 'common' this was.
He is treating a cyclist who races. The cyclists thyroid is all over too. The doctor put him on medication. The medication made him MUCH sicker and he begged and pleaded to go off it. The doctor took him off it. Then he was retested. His thyroid was off again so now he has been put back on medication. End of story.
THAT was his story to calm me down? Now I am even more freaked out. I don't know which is worse; what is going on now or being treated for what is going on now? The doctor tells me that the autoimmune will likely continue to attack my thyroid until it is destroyed. But that is why often the thyroid is removed.
Personally, in calming patients down I really think doctors shouldn’t use the words “Destroyed” and “removed” next to each other when talking about an organ.
“But...but...in the letter” I pleaded, “You said only half my thyroid had a goiter, can’t we save it.”
“Let’s not get ahead of ourselves.” He says closing off the subject.
He checks and yes, I still have a goiter. So what do we do now. More blood tests. But he already thinks my thyroid is in flux due to the autoimmune so how many more tests are we going to do? Best not to ask. But he agrees that when (if) he treats, I might get some more energy.
He reminds me that this will not fix my heart or neuro problems.
“But, if it is in flux, shouldn’t I get days when I feel really great?” I want to know, “I think I am being cheated.”
“It doesn’t work like that.”
So in the end, doctor actually smiling because now there are two DIFFERENT abnormal results. Doctor using the phrase “patient pleading” and the words "attacked", “destroy” and “remove” in the meeting and now...more tests.
Damn it, I hate it when they give you hope.
1 day ago